Question:

Yeah, dumb … dumb.  If you find something wrong with a web page, the responsible thing to do is to notify the website operators directly. website fails to provide an email address. If this weren’t crossposted, I’d say it’s worth an IOM nomination for that comment alone. You lack creativity, "Se th". Ever been elected to Mensa, "Se th"?

Oh, look, my pet troll is back.  Not that I missed it; there’s never been a shortage of flameworthy targets on Usenet. I’m going to TINYURL you, right now, like that: http://tinyurl.com/dbuce Here!

Seth — When I’m telling you to get a life, it’s time to consider suicide very seriously. — Lyle McDonald

Response:

Besides, the owner of one of the sites I mentioned already picked up and thanked me in a followup. So should you. I’m doing a public service providing information not widely known yet.

I shall commission a statue of you at once. But most of all, I’m concerned about YOUR health, therefore I choose to warn you directly.

So, you gonna drop by and lance this boil on my butt? Penelope — Dinna let yer wind fly out Nor flap ‘n wave yer kilt about Lest yer own beloved, true heart Bitch and moan about yer fart

Response:

Aristolochic acid is a strong carcinogen found in few plants – including species of "wild ginger" (Asarum, no relation to normal ginger). Consumption of plants that contain aristolochic acid lead to kidney damage and subsequent development of cancer, e.g. http://tinyurl.com/9xk6d Yeah, dumb … dumb.  If you find something wrong with a web page, the responsible thing to do is to notify the website operators directly. website fails to provide an email address.

If this weren’t crossposted, I’d say it’s worth an IOM nomination for that comment alone. Seth — 99% of the time, he is rude to the people who do in fact deserve it. — Will Brink

Response:

Aristolochic acid is a strong carcinogen found in few plants – including species of "wild ginger" (Asarum, no relation to normal ginger). Consumption of plants that contain aristolochic acid lead to kidney damage and subsequent development of cancer, e.g. http://tinyurl.com/9xk6d Yeah, dumb … dumb.  If you find something wrong with a web page, the responsible thing to do is to notify the website operators this, if the website fails to provide an email address. Why are you whining here, like some kind of a cry baby?

Try to stay focused. There is nothing wrong with that website (PubMed). On the other hand, there is plenty wrong with NUMEROUS websites advocating usage of aristolochic acid-containing plant "wild ginger" as food and alternative medicine.  What I posted "here" was a tiny random selection – so complaining would be purely impractical. Besides, the owner of one of the sites I mentioned already picked up and thanked me in a followup. So should you. I’m doing a public service providing information not widely known yet. In fact, I have considered emailing to owners of some of the web sites. But where is guarantee that it is an effective measure to make YOU stop chewing on the wild ginger root? (I’m using "YOU" here in most general sense, not to be interpreted as personally directed at "Mr-Natural-Health") I have considered likelihood of possible replies of the alternative medicine websites owners. Among those I would likely receive:    1) "Why are you whining here, like some kind of a cry baby?"    2) "But dude, it’s like all natural ‘n’ stuff, so, like, it’s gotta be good for ya!  Y’know?" (thanks to JMW from www.rustyiron.net who insightfully anticipated this one)    3) "2000 years of Chinese traditional medicine can’t be wrong."    4) "We’ll remove the entry" (fine, the entry goes away, but how would YOU know to stop chewing on the "delicious" wild ginger root?)    5) "The holistic yin yang blah blah beautiful complexity of natural wild ginger root ingredients can’t be equated with simple-minded reductionist communist approach of academic scientific bullies". But most of all, I’m concerned about YOUR health, therefore I choose to warn you directly. Cheers and stay away from "wild ginger"!

Response:

Alternative Nature Herbals a

Question:

– Hide quoted text — Show quoted text – How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K Hi KK If you go to the UKPDS site for the Diabetes Risk Engine at http://www.dtu.ox.ac.uk/index.html?maindoc=/riskengine/ you can download a program which will calculate that. I accept that it is artificial and has limitations, but it’s from a pretty reputable source. In my own case, I put in the HbA1c, blood pressure, lipids and other factors for myself, then set it to find out my chances of making age 75. I was 55 at dx and I am 57 now. % risk of:  At Diagnosis:   Now:            And If I hadn’t acted:   CHD                  75.6           25.9                    81.8     Fatal CHD               51.6            16.6                     59.2       Stroke                     30.7         15.8                40.2     Fatal Stroke                        4.6           1.9                     6 I hope the table worked. What that means is that, according to their software, I had a combined 56.2 % chance of dying from heart disease or stroke before 75 when I was diagnosed, but that has decreased to 18.5% now because of my improved BP, lipids and A1c. The chances of having CHD or stroke (fatal or otherwise) before 75 was 86.3%, and is now 41.7%. I’m not excited about 41.7%, but it’s a damn sight more comforting than 86.3%. And if I’d done nothing, it would have been a combined 121% – in other words a dead certainty.

Oops – post-script correction. That should be 106.3%, not 86.3%. Possibly those numbers (which don’t even include the ‘opathys) will explain why I get passionate about Jennifer’s "test,test,test" advice and the value of the other info on these newsgroups.

Further post-script – I should have added that I intend to beat the odds:-) Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

kewl little calculator….. slick download took maybe 1.5 min on DSL and i get to play now :-) kate (also happy with the #’s she sees……. i’ll live another 10 yrs at least ) — Join us in the Diabetic-Talk Chatroom on UnderNet /server irc.undernet.org — /join #Diabetic-Talk More info: http://www.diabetic-talk.org/

– Hide quoted text — Show quoted text – How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K Hi KK If you go to the UKPDS site for the Diabetes Risk Engine at http://www.dtu.ox.ac.uk/index.html?maindoc=/riskengine/ you can download a program which will calculate that. I accept that it is artificial and has limitations, but it’s from a pretty reputable source. In my own case, I put in the HbA1c, blood pressure, lipids and other factors for myself, then set it to find out my chances of making age 75. I was 55 at dx and I am 57 now. % risk of: At Diagnosis: Now: And If I hadn’t acted: CHD          75.6    25.9     81.8 Fatal CHD     51.6     16.6      59.2 Stroke        30.7     15.8      40.2 Fatal Stroke 4.6       1.9       6 I hope the table worked. What that means is that, according to their software, I had a combined 56.2 % chance of dying from heart disease or stroke before 75 when I was diagnosed, but that has decreased to 18.5% now because of my improved BP, lipids and A1c. The chances of having CHD or stroke (fatal or otherwise) before 75 was 86.3%, and is now 41.7%. I’m not excited about 41.7%, but it’s a damn sight more comforting than 86.3%. And if I’d done nothing, it would have been a combined 121% – in other words a dead certainty. Possibly those numbers (which don’t even include the ‘opathys) will explain why I get passionate about Jennifer’s "test,test,test" advice and the value of the other info on these newsgroups. Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

– Hide quoted text — Show quoted text – How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K Hi KK If you go to the UKPDS site for the Diabetes Risk Engine at http://www.dtu.ox.ac.uk/index.html?maindoc=/riskengine/ you can download a program which will calculate that. I accept that it is artificial and has limitations, but it’s from a pretty reputable source. In my own case, I put in the HbA1c, blood pressure, lipids and other factors for myself, then set it to find out my chances of making age 75. I was 55 at dx and I am 57 now. % risk of: At Diagnosis: Now: And If I hadn’t acted: CHD          75.6    25.9     81.8 Fatal CHD     51.6     16.6      59.2 Stroke        30.7     15.8      40.2 Fatal Stroke 4.6       1.9       6 I hope the table worked. What that means is that, according to their software, I had a combined 56.2 % chance of dying from heart disease or stroke before 75 when I was diagnosed, but that has decreased to 18.5% now because of my improved BP, lipids and A1c. The chances of having CHD or stroke (fatal or otherwise) before 75 was 86.3%, and is now 41.7%. I’m not excited about 41.7%, but it’s a damn sight more comforting than 86.3%. And if I’d done nothing, it would have been a combined 121% – in other words a dead certainty. Oops – post-script correction. That should be 106.3%, not 86.3%. Possibly those numbers (which don’t even include the ‘opathys) will explain why I get passionate about Jennifer’s "test,test,test" advice and the value of the other info on these newsgroups. Further post-script – I should have added that I intend to beat the odds:-)

Hah!  You think YOU do?  Try running the numbers for a 32yo dx! VBH T2/UK/A1c 5.8/ 1000Met/Dx Oct-03

Response:

How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K

Hi KK If you go to the UKPDS site for the Diabetes Risk Engine at http://www.dtu.ox.ac.uk/index.html?maindoc=/riskengine/ you can download a program which will calculate that. I accept that it is artificial and has limitations, but it’s from a pretty reputable source. In my own case, I put in the HbA1c, blood pressure, lipids and other factors for myself, then set it to find out my chances of making age 75. I was 55 at dx and I am 57 now. % risk of:      At Diagnosis:   Now:            And If I hadn’t acted:   CHD                      75.6           25.9                    81.8     Fatal CHD                   51.6            16.6                     59.2       Stroke                 30.7         15.8                40.2     Fatal Stroke                    4.6           1.9                     6 I hope the table worked. What that means is that, according to their software, I had a combined 56.2 % chance of dying from heart disease or stroke before 75 when I was diagnosed, but that has decreased to 18.5% now because of my improved BP, lipids and A1c. The chances of having CHD or stroke (fatal or otherwise) before 75 was 86.3%, and is now 41.7%. I’m not excited about 41.7%, but it’s a damn sight more comforting than 86.3%. And if I’d done nothing, it would have been a combined 121% – in other words a dead certainty. Possibly those numbers (which don’t even include the ‘opathys) will explain why I get passionate about Jennifer’s "test,test,test" advice and the value of the other info on these newsgroups. Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K

Response:

How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K

51 Only kidding Should be 82 with proper management

Response:

I have diabetes (type1) I have never thought it would shorten my life. I have a neighbour aged 89 who has type2.  My advice would be to take care of your diabetes, get to understand it and be in control. You could get run over by a bus if you dont look where your going, and that could be today! Stay active, eat the right food’s, take any medication you need and listen to advice. Regards, Bev

– Hide quoted text — Show quoted text – How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K

Response:

Ah but in doing so you assume that your idea of a decent climate is the same as those you bait. Personally I think your climate is not all it’s cracked up to be.

Yeah, I suppose it’s another YMMV thing. It rained the whole week we were in Fiji, and was bloody cold in Melbourne (2000 km south of here) – 10-15 max when we were there. We’re all praying for decent rain around here at the moment, so it does get a bit dry. And they’re mumbling about El Nino returning next year as well. I’ll have to ponder on that when I go for my swim after lunch. Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

- Hide quoted text — Show quoted text – Ah but in doing so you assume that your idea of a decent climate is the same as those you bait. Personally I think your climate is not all it’s cracked up to be. Yeah, I suppose it’s another YMMV thing. It rained the whole week we were in Fiji, and was bloody cold in Melbourne (2000 km south of here) – 10-15 max when we were there. We’re all praying for decent rain around here at the moment, so it does get a bit dry. And they’re mumbling about El Nino returning next year as well. I’ll have to ponder on that when I go for my swim after lunch. Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email.

All in the luck of he draw.  There are a lot worse places to live than Blighty.   Apparently Florida has nice weather…..just not at this time of year. Then there’s Oz….lots of sunshine and swimming….and the most toxic wildlife on the planet including ones that lie in wait to bite you when you it on the throne. hmmm…think I’ll stick to nice predictable rain….. I’ll ponder that on my paddle to work… VBH T2/UK/A1c 5.8/ 1000Met/Dx Oct-03

Response:

<snip – Hide quoted text — Show quoted text -But it can serve a good purpose as a "motivating scare" to someone who is not making efforts to control their disease, particularly because it includes the three big ones: A1c, BP and lipids. Like testing, it can be used as a useful tool provided it’s limitations are understood. I have tried a similar program on the heartcenter site with results that can correlate. I agree that there is usefulness to be had but it’s pretty much like carb counting for every meal. With some the danger is that you get too bogged down in minutiae that eventualy you become obsessed. unhealthily so. How’s the gardening going? laws new bungalow – which was like a jungle – and as a result mine has gone the same. Got an excellent crop of Cooking Apples this year. Touble is we do not use them and they end up in the bin.

Hi Pete My only obsession is working out travel plans for trips I may never take….certainly not BGs and diabetes control. Those are necessities, like eating food, or going to the lav, not obsessions. Cook your windfalls up as apple sauce or pies etc. Take them to the local market – or give them away to those who do use them. At least it’s giving you good exercise. And don’t sweat it – yours will all stop growing in a few months:-) I just pulled out the winter tomatoes, the spring ones are coming along nicely. My winter carrots look great on the surface but are only a couple of inches long when you pick them. Still picking lots of silver-beet (sort of like chard/spinach), herbs, chili, capsicum etc. And to the OP, who by now is wondering what this has to do with life expectancy – whatever life you have left, read here to prolong it but make sure you also enjoy it if you do. One of my malicious forms of enjoyment is to needle the climatically challenged:-) Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

With current medical knowledge, good control through proper health care and medication a diabetic can become as old as any non-diabetic. Sometimes I wonder if the question "how does driving (in) a car affects average life expectancy" has more relevance, but that may be beside _your_  point. — CeeBee

Actually, I think that’s right on the point. Plan your future wisely, but live each day to the full, because you just don’t know what may happen tomorrow. Carpe Diem. Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

The trouble with delving into this as deep as you seem to have done is that you either spent too much valuable time researching / worrying and in doing so use up valuable time.

Hi Pete Hey – I’m retired mate, with time on my hands:-) Which is why I’m able to hang around here and annoy you. I only discovered the thing recently, so I played around with it. As I noted, it’s artificial and has limitations. However, I found it useful to reassure me that I was heading in the right direction, not something I was worrying about. It was also very specific to the OP’s question. It starts to break down as you get to the unrealistic fringes, like an A1c of 2 or cholesterol of 1. It’s also dependent on the present state of research and the parameter weightings that result. But it can serve a good purpose as a "motivating scare" to someone who is not making efforts to control their disease, particularly because it includes the three big ones: A1c, BP and lipids. Like testing, it can be used as a useful tool provided it’s limitations are understood. I have tried a similar program on the heartcenter site with results that can correlate. How’s the gardening going? Cheers, Alan, T2 d&e, Australia. Remove weight and carbs to email. — Everything in Moderation – Except Laughter.

Response:

Oh gee, thanx for that!!

– Hide quoted text — Show quoted text – x-no-archive: yes I have diabetes (type1) I have never thought it would shorten my life. I have a neighbour aged 89 who has type2.  My advice would be to take care of your diabetes, get to understand it and be in control. You could get run over by a bus if you dont look where your going, and that could be today! Stay active, eat the right food’s, take any medication you need and listen to advice. "Women with diabetes have a shorter life expectancy than women without diabetes, and women are at greater risk of blindness from diabetes than men." from http://www.cdc.gov/diabetes/pubs/women/ " a.. Life expectancy for people with type 1 diabetes may be shortened by as much as 15 years. Life expectancy for people with type 2 diabetes may be shortened by 5 to 10 years. " canadian source … http://www.diabetes.ca/Section_About/prevalence.asp

Response:

– Hide quoted text — Show quoted text – How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K Hi KK If you go to the UKPDS site for the Diabetes Risk Engine at http://www.dtu.ox.ac.uk/index.html?maindoc=/riskengine/ you can download a program which will calculate that. I accept that it is artificial and has limitations, but it’s from a pretty reputable source. In my own case, I put in the HbA1c, blood pressure, lipids and other factors for myself, then set it to find out my chances of making age 75. I was 55 at dx and I am 57 now. % risk of: At Diagnosis: Now: And If I hadn’t acted: CHD          75.6    25.9     81.8 Fatal CHD     51.6     16.6      59.2 Stroke        30.7     15.8      40.2 Fatal Stroke 4.6       1.9       6 I hope the table worked. What that means is that, according to their software, I had a combined 56.2 % chance of dying from heart disease or stroke before 75 when I was diagnosed, but that has decreased to 18.5% now because of my improved BP, lipids and A1c. The chances of having CHD or stroke (fatal or otherwise) before 75 was 86.3%, and is now 41.7%. I’m not excited about 41.7%, but it’s a damn sight more comforting than 86.3%. And if I’d done nothing, it would have been a combined 121% – in other words a dead certainty. Possibly those numbers (which don’t even include the ‘opathys) will explain why I get passionate about Jennifer’s "test,test,test" advice and the value of the other info on these newsgroups. Cheers, Alan, T2 d&e, Australia.

Thanks for reminding me of that.  I think the last time I looked it up (close to dx) I did not have a full set of numbers. If you think your numbers were bleak, my non-action numbers came out at 174% by age 75 (86% by age 60) Sardine salad and gym for me tonight I think… VBH T2/UK/A1c 5.8/ 1000Met/Dx Oct-03

Response:

How does Diabetes (type 2) affect average life expectancy ? As a 50 yr-old my life expectancy was (I think) 82. What is it now? K

This from a diabetes book I saw on my GP’s shelf "Hand book of Diabetes – second edition" Williams, Pickup. 2003. "Overall life expectancy in the diabetic patient is reduced by about 25%. The causes of death differ in type 1 and type 2 diabetes. In type 1 nephropathy and heart disease are common, whereas in type 2 diabetes most deaths are due to cardiovascular disease, including stroke." Cardiovascular disease              15                        58 Cerebrovascular disease             3                         12 Nephropathy                               55                         3 Diabetic coma                             4                          1 Malignancy                                  0                         11 Infections                                    10                         4 Others                                         13                        11 – A lot of people don’t manage their diabetes very well. If you can control your diabetes well mortality can become more like the non-diabetic population. In the general population there is a see-saw effect between the top killers cardiovascular disease and malignancy. Lean people are more affected by cancer and fat people more affected by heart disease. We are lucky here in the west, in developing countries premature death is far more common from potentially avoidable or treatable hypoglyceamia, ketoacidosis and infection. Citizen DM

Response:

He forgot to mention that by keeping control you’ll live a lot longer than you would have otherwise:) And anyway you can still get deaded by all the usual non dm related stuff …. don’t worry about what you can’t change:) — Patrick / Fester Type 1 Diabetic. Dx’d 1993. On 26u Lantus and whatever Novorapid my meter says i need. – Hide quoted text — Show quoted text – Oh gee, thanx for that!! x-no-archive: yes I have diabetes (type1) I have never thought it would shorten my life. I have a neighbour aged 89 who has type2.  My advice would be to take care of your diabetes, get to understand it and be in control. You could get run over by a bus if you dont look where your going, and that could be today! Stay active, eat the right food’s, take any medication you need and listen to advice. "Women with diabetes have a shorter life expectancy than women without diabetes, and women are at greater risk of blindness from diabetes than men." from http://www.cdc.gov/diabetes/pubs/women/ " a.. Life expectancy for people with type 1 diabetes may be shortened by as much as 15 years. Life expectancy for people with type 2 diabetes may be shortened by 5 to 10 years. " canadian source … http://www.diabetes.ca/Section_About/prevalence.asp

Response:

All in the luck of he draw.  There are a lot worse places to live than Blighty.   Apparently Florida has nice weather…..just not at this time of year. Then there’s Oz….lots of sunshine and swimming….and the most toxic wildlife on the planet including ones that lie in wait to bite you when you it on the throne. hmmm…think I’ll stick to nice predictable rain….. I’ll ponder that on my paddle to work…

 :-))) Cheers, Alan —

Response:

Question:

On Wed, 14 Apr 2004 21:04:27 -0400, BRTurner <yam…@operamail.com> wrote: – Hide quoted text — Show quoted text ->On Sat, 10 Apr 2004 19:18:50 +0100, IgAN <nomailfacil…@1230.net> wrote: >>On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote: >>It seems Pierre of igan.ca saw fit to cancel this message. I wonder >>why? (reprinted here for posterity) >>Could it be the exposure of his disclaimer >>" Please note that from time to time, it may be necessary for new >>members or messages to be approved by the moderators. If this is the >>case when you subscribe, it shouldn’t take long for a moderator to >>approve. Controlled access is sometimes needed for everyone’s benefit >>and enjoyment of this group." >>Don’t try canceling any more messages Pierre or you’ll come a cropper, >>usenet isn’t your own captive audience, here we make our own minds up >>what we want to read.. >Whilst this fellow Pierre appears to be somewhat heavy handed from what I have read >here in the last few days, he isn’t deleting anything from Usenet; but the yahoo >groups or the IGA Cafe where he is admin or moderator. These are not Usenet groups >and he can to lord over them.

Dead right, but when it comes to depriving people of valuable information on a supposed support group! >As Don said there are a number of reasons that a moderator may delete a message and >not all make sense… >Regardless, in this case it seems to be a yahoo site and group that this guy >controls and further there appears to be some doubt about the validity of some of >the information. If this is truly the case, one would suggest staying away from his >site and seeking information elsewhere.

Not good enough when you know there are people being hoodwinked. One needs to do something to make them aware of the situation. – Hide quoted text — Show quoted text ->Keep in mind that this group is a listserve that is mirrored to Usenet. And while I >have had and seen where messages have been stopped for those that access the group >thru an email client; those of us that post thru a Usenet server are not affected >when a moderator sees fit to stop a message. >There are links here: >http://www.lifeoptions.org/patient/links/spprt_gs.shtml >There is also the idea of creating a newsgroup on the subject. Information on this >can be found here: >http://www.faqs.org/faqs/usenet/creating-newsgroups/part1/ >Or, lastly consider something like Ezboards or yahoo groups and start your own >support group. >Just some thoughts. >[snip]

""""""""""""""""""""""""""""""""""""""""""""""""""" It would seem we need to BEWARE who we seek advice from. WWW.IGAN.CA is an heavily censored site, this includes the listserv iga-nephropathy @yahoogroups.com. It is also run for financial reward, the profits of which solely support it’s founder and host Pierre. The original IgAN help group was www.igan.org hosted by Russ George. It is now proposed that the very valuable information on that website is published once again, so that IgAN sufferers have a resource they can trust once again. please note we have no connection with igan.org this is a public information service. Much of the information here is direct from www.igan.org website you will NOT find this valuable information at igan.ca, because it has been censored by a misfit who left the real IgAN support group in a sulk and decided to deceive us with his own website full of misinformation. Check it out yourselves and compare notes. Most of the email addresses and links appear out of date One day we hope Igan.Org will rise Phoenix like from the ashes and Russ George again in the forefront of IgAN support.

Response:

I have a suggestion. I suggest you and him go fight. Don Killen P.S. The reason moderators do what they do is diverse. Not all are pure altruistic, and not all are pure moneymaking schemes. In fact, it is a little distracting to see IGAN soliciting donations–they don’t really say for what. "IgAN" <nomailfacil…@1230.net> wrote in message

news:3aeg70l9o9d3addtls8g84vdpj2uij9egi@4ax.com… – Hide quoted text — Show quoted text -> On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote: > It seems Pierre of igan.ca saw fit to cancel this message. I wonder > why? (reprinted here for posterity) > Could it be the exposure of his disclaimer > " Please note that from time to time, it may be necessary for new > members or messages to be approved by the moderators. If this is the > case when you subscribe, it shouldn’t take long for a moderator to > approve. Controlled access is sometimes needed for everyone’s benefit > and enjoyment of this group." > Don’t try canceling any more messages Pierre or you’ll come a cropper, > usenet isn’t your own captive audience, here we make our own minds up > what we want to read.. > Now continue to read the rest of the message. > >On Tue, 6 Apr 2004 05:19:22 -0400 (EDT), User Library > ><libr…@cotse.net> wrote: > >>On Tue, 6 Apr 2004 08:53:26 +0000 (UTC), libr…@cotse.net (User > >>Library) wrote: > >>>On Tue, 06 Apr 2004 09:29:33 +0100, David Crane <d…@yahoo.co.uk> > >>>wrote: > >>>>Any help groups out there or lists worth subscribing to? > >>>>PS: not the french canadian site which seems to be a scam. > >>>>David. > >>>You of course refer to www.igan.ca, run by exile Pierre and > >>*claiming* > >>>to be *IgA Nephropathy Support Group*, which is in reality a ripoff > >>of > >>>the original IGAN *www.igan.org* which used to be frequented by > >>>specialists and patients alike. Seems to have bit the dust, which is > >>>sad. People visit, or rather are lured to www.igan.ca with the > >>>deliberate intent of deceiving them into thinking it is the old > >>group, > >>>without realising this group is heavily censored and a money making > >>>scam in reality, the advice given is poor, plagiarised or just plain > >>>incorrect. This deprives victims of a very serious degenerative > >>>disease of a valuable resource. It’s very likely this website was the > >>>cause for the closure of the original. > >>>The founder, Pierre often ridiculed serious research and claimed the > >>>best thing for IGAN was to do nothing! his pet hate was the *fish > >>oil* > >>>treatment. > >>>Does anyone know if the original resource is still available at > >>>igan.org? it would be wise if it were maintained and shown, even if > >>>just to serve as an impartial resource to counter the 500+ gullible > >>>victims igan.ca *claims*. > >>>It’s sad to see what one rogue element can do, when greed and avarice > >>>take over. > >>>Visit the site www.igan.ca and you’ll note he doesnt even mention the > >>>old resource contents, despite it being the foundation stone for IGAN > >>>research on the internet and available toe @everyone@ without > >>>subscription. > >>Be very careful about your accusations, Pierre is not averse to legal > >>action to silence what is now a very lucrative service. > >>When he first went off in a sulk and tried to take the ball with him, > >>he did make it fairly clear he was not Russ’s group www.igan.org > >>Heres an advert of his. > >>"" Pierre L posted the following article in the Patients Support Forum > >>http://brumley.com/renal/patientboard.html > >>Dated  : January 26, 2001 at 12:38:25 > >>Subject: Change in iga-nephropathy eGroup > >>http://brumley.com/renal/patientmessages/10021.html > >>On the internet, the more things change, the "less" they stay the same. > >>eGroups have now become Yahoo!Groups. So, if you have iga nephropathy, > >>the new group site is: > >>http://groups.yahoo.com/group/iga-nephropathy > >>or you can subscribe by emailing: > >>iga-nephropathy-subscr…@yahoogroups.com > >>This is not the same as the IgAN Foundation’s listserv. I am not > >>associated in any way with that organisation, and I don’t promote > >>unproven alternative therapies, tonsillectomies or anything else. Just > >>straight facts and help about IgAN."" > >>Note the last paragraph in particular. Then I’d advise you to visit > >>his website and list, you’ll find all information in that line is > >>suppressed & censored. In fact you’d be hard pushed to find any > >>serious research or questions on his site. > >>Something seriously wrong about a website that steers you clear of > >>impartiatlity, perhaps he thinks we are unable use our own minds for > >>decisons? I fear something more sinister :[[ > >>Lee > >It sure is. > >Do a search on google, you’ll see the snide remarks aimed at igan.org. > >Censorship certainly is alive and well at igan.ca. > >-quote- > >-Please note that from time to time, it may be necessary for new > >members or messages to be approved by the moderators. If this is the > >case when you subscribe, it shouldn’t take long for a moderator to > >approve. Controlled access is sometimes needed for everyone’s benefit > >and enjoyment of this group._ > >Lol, controlled access indeed. > >The website http://www.igan.ca/ is almost a copy of www.igan.org and > >certainly designed to give the impression it is the same respected > >people. > >IgA Nephropathy Support Group > >Where is Russ George these days, perhaps he should prosecute?. > >It’s all very well a misfit starting up their own group, but at the > >expense of established sites?, I don’t think so somehow. > """"""""""""""""""""""""""""""""""""""""""""""""""" > It would seem we need to BEWARE who we seek advice from. > WWW.IGAN.CA is an heavily censored site, this includes > the listserv iga-nephropathy @yahoogroups.com. It is also > run for financial reward, the profits of which solely support it’s founder > and host Pierre. > The original IgAN help group was www.igan.org hosted by > Russ George. > It is now proposed that the very valuable information on > that website is published once again, so that IgAN > sufferers have a resource they can trust once again. > please note we have no connection with igan.org this > is a public information service. > Much of the information here is direct from www.igan.org website > you will NOT find this valuable information at igan.ca, > because it has been censored by a misfit who left > the real IgAN support group in a sulk and decided to deceive us > with his own website full of misinformation. > Check it out yourselves and compare notes. > Most of the email addresses and links appear out of date > One day we hope Igan.Org will rise Phoenix like from the ashes > and Russ George again in the forefront of IgAN support.

Response:

On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote:

It seems Pierre of igan.ca saw fit to cancel this message. I wonder why? (reprinted here for posterity) Could it be the exposure of his disclaimer " Please note that from time to time, it may be necessary for new members or messages to be approved by the moderators. If this is the case when you subscribe, it shouldn’t take long for a moderator to approve. Controlled access is sometimes needed for everyone’s benefit and enjoyment of this group." Don’t try canceling any more messages Pierre or you’ll come a cropper, usenet isn’t your own captive audience, here we make our own minds up what we want to read.. Now continue to read the rest of the message. – Hide quoted text — Show quoted text ->On Tue, 6 Apr 2004 05:19:22 -0400 (EDT), User Library ><libr…@cotse.net> wrote: >>On Tue, 6 Apr 2004 08:53:26 +0000 (UTC), libr…@cotse.net (User >>Library) wrote: >>>On Tue, 06 Apr 2004 09:29:33 +0100, David Crane <d…@yahoo.co.uk> >>>wrote: >>>>Any help groups out there or lists worth subscribing to? >>>>PS: not the french canadian site which seems to be a scam. >>>>David. >>>You of course refer to www.igan.ca, run by exile Pierre and >>*claiming* >>>to be *IgA Nephropathy Support Group*, which is in reality a ripoff >>of >>>the original IGAN *www.igan.org* which used to be frequented by >>>specialists and patients alike. Seems to have bit the dust, which is   >>>sad. People visit, or rather are lured to www.igan.ca with the >>>deliberate intent of deceiving them into thinking it is the old >>group, >>>without realising this group is heavily censored and a money making >>>scam in reality, the advice given is poor, plagiarised or just plain >>>incorrect. This deprives victims of a very serious degenerative >>>disease of a valuable resource. It’s very likely this website was the >>>cause for the closure of the original. >>>The founder, Pierre often ridiculed serious research and claimed the >>>best thing for IGAN was to do nothing! his pet hate was the *fish >>oil* >>>treatment. >>>Does anyone know if the original resource is still available at >>>igan.org? it would be wise if it were maintained and shown, even if >>>just to serve as an impartial resource to counter the 500+ gullible >>>victims igan.ca *claims*. >>>It’s sad to see what one rogue element can do, when greed and avarice >>>take over. >>>Visit the site www.igan.ca and you’ll note he doesnt even mention the >>>old resource contents, despite it being the foundation stone for IGAN >>>research on the internet and available toe @everyone@ without >>>subscription. >>Be very careful about your accusations, Pierre is not averse to legal >>action to silence what is now a very lucrative service. >>When he first went off in a sulk and tried to take the ball with him, >>he did make it fairly clear he was not Russ’s group www.igan.org >>Heres an advert of his. >>"" Pierre L posted the following article in the Patients Support Forum >>http://brumley.com/renal/patientboard.html >>Dated  : January 26, 2001 at 12:38:25 >>Subject: Change in iga-nephropathy eGroup >>http://brumley.com/renal/patientmessages/10021.html >>On the internet, the more things change, the "less" they stay the same. >>eGroups have now become Yahoo!Groups. So, if you have iga nephropathy, >>the new group site is: >>http://groups.yahoo.com/group/iga-nephropathy >>or you can subscribe by emailing: >>iga-nephropathy-subscr…@yahoogroups.com >>This is not the same as the IgAN Foundation’s listserv. I am not >>associated in any way with that organisation, and I don’t promote >>unproven alternative therapies, tonsillectomies or anything else. Just >>straight facts and help about IgAN."" >>Note the last paragraph in particular. Then I’d advise you to visit >>his website and list, you’ll find all information in that line is >>suppressed & censored. In fact you’d be hard pushed to find any >>serious research or questions on his site. >>Something seriously wrong about a website that steers you clear of >>impartiatlity, perhaps he thinks we are unable use our own minds for >>decisons? I fear something more sinister :[[ >>Lee >It sure is. >Do a search on google, you’ll see the snide remarks aimed at igan.org. >Censorship certainly is alive and well at igan.ca. >-quote- >-Please note that from time to time, it may be necessary for new >members or messages to be approved by the moderators. If this is the >case when you subscribe, it shouldn’t take long for a moderator to >approve. Controlled access is sometimes needed for everyone’s benefit >and enjoyment of this group._ >Lol, controlled access indeed. >The website http://www.igan.ca/ is almost a copy of www.igan.org and >certainly designed to give the impression it is the same respected >people. >IgA Nephropathy Support Group >Where is Russ George these days, perhaps he should prosecute?. >It’s all very well a misfit starting up their own group, but at the >expense of established sites?, I don’t think so somehow.

""""""""""""""""""""""""""""""""""""""""""""""""""" It would seem we need to BEWARE who we seek advice from. WWW.IGAN.CA is an heavily censored site, this includes the listserv iga-nephropathy @yahoogroups.com. It is also run for financial reward, the profits of which solely support it’s founder and host Pierre. The original IgAN help group was www.igan.org hosted by Russ George. It is now proposed that the very valuable information on that website is published once again, so that IgAN sufferers have a resource they can trust once again. please note we have no connection with igan.org this is a public information service. Much of the information here is direct from www.igan.org website you will NOT find this valuable information at igan.ca, because it has been censored by a misfit who left the real IgAN support group in a sulk and decided to deceive us with his own website full of misinformation. Check it out yourselves and compare notes. Most of the email addresses and links appear out of date One day we hope Igan.Org will rise Phoenix like from the ashes and Russ George again in the forefront of IgAN support.

Response:

Question:

On Wed, 14 Apr 2004 21:04:27 -0400, BRTurner <yam…@operamail.com> wrote: – Hide quoted text — Show quoted text ->On Sat, 10 Apr 2004 19:18:50 +0100, IgAN <nomailfacil…@1230.net> wrote: >>On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote: >>It seems Pierre of igan.ca saw fit to cancel this message. I wonder >>why? (reprinted here for posterity) >>Could it be the exposure of his disclaimer >>" Please note that from time to time, it may be necessary for new >>members or messages to be approved by the moderators. If this is the >>case when you subscribe, it shouldn’t take long for a moderator to >>approve. Controlled access is sometimes needed for everyone’s benefit >>and enjoyment of this group." >>Don’t try canceling any more messages Pierre or you’ll come a cropper, >>usenet isn’t your own captive audience, here we make our own minds up >>what we want to read.. >Whilst this fellow Pierre appears to be somewhat heavy handed from what I have read >here in the last few days, he isn’t deleting anything from Usenet; but the yahoo >groups or the IGA Cafe where he is admin or moderator. These are not Usenet groups >and he can to lord over them.

Dead right, but when it comes to depriving people of valuable information on a supposed support group! >As Don said there are a number of reasons that a moderator may delete a message and >not all make sense… >Regardless, in this case it seems to be a yahoo site and group that this guy >controls and further there appears to be some doubt about the validity of some of >the information. If this is truly the case, one would suggest staying away from his >site and seeking information elsewhere.

Not good enough when you know there are people being hoodwinked. One needs to do something to make them aware of the situation. – Hide quoted text — Show quoted text ->Keep in mind that this group is a listserve that is mirrored to Usenet. And while I >have had and seen where messages have been stopped for those that access the group >thru an email client; those of us that post thru a Usenet server are not affected >when a moderator sees fit to stop a message. >There are links here: >http://www.lifeoptions.org/patient/links/spprt_gs.shtml >There is also the idea of creating a newsgroup on the subject. Information on this >can be found here: >http://www.faqs.org/faqs/usenet/creating-newsgroups/part1/ >Or, lastly consider something like Ezboards or yahoo groups and start your own >support group. >Just some thoughts. >[snip]

""""""""""""""""""""""""""""""""""""""""""""""""""" It would seem we need to BEWARE who we seek advice from. WWW.IGAN.CA is an heavily censored site, this includes the listserv iga-nephropathy @yahoogroups.com. It is also run for financial reward, the profits of which solely support it’s founder and host Pierre. The original IgAN help group was www.igan.org hosted by Russ George. It is now proposed that the very valuable information on that website is published once again, so that IgAN sufferers have a resource they can trust once again. please note we have no connection with igan.org this is a public information service. Much of the information here is direct from www.igan.org website you will NOT find this valuable information at igan.ca, because it has been censored by a misfit who left the real IgAN support group in a sulk and decided to deceive us with his own website full of misinformation. Check it out yourselves and compare notes. Most of the email addresses and links appear out of date One day we hope Igan.Org will rise Phoenix like from the ashes and Russ George again in the forefront of IgAN support.

Response:

I have a suggestion. I suggest you and him go fight. Don Killen P.S. The reason moderators do what they do is diverse. Not all are pure altruistic, and not all are pure moneymaking schemes. In fact, it is a little distracting to see IGAN soliciting donations–they don’t really say for what. "IgAN" <nomailfacil…@1230.net> wrote in message

news:3aeg70l9o9d3addtls8g84vdpj2uij9egi@4ax.com… – Hide quoted text — Show quoted text -> On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote: > It seems Pierre of igan.ca saw fit to cancel this message. I wonder > why? (reprinted here for posterity) > Could it be the exposure of his disclaimer > " Please note that from time to time, it may be necessary for new > members or messages to be approved by the moderators. If this is the > case when you subscribe, it shouldn’t take long for a moderator to > approve. Controlled access is sometimes needed for everyone’s benefit > and enjoyment of this group." > Don’t try canceling any more messages Pierre or you’ll come a cropper, > usenet isn’t your own captive audience, here we make our own minds up > what we want to read.. > Now continue to read the rest of the message. > >On Tue, 6 Apr 2004 05:19:22 -0400 (EDT), User Library > ><libr…@cotse.net> wrote: > >>On Tue, 6 Apr 2004 08:53:26 +0000 (UTC), libr…@cotse.net (User > >>Library) wrote: > >>>On Tue, 06 Apr 2004 09:29:33 +0100, David Crane <d…@yahoo.co.uk> > >>>wrote: > >>>>Any help groups out there or lists worth subscribing to? > >>>>PS: not the french canadian site which seems to be a scam. > >>>>David. > >>>You of course refer to www.igan.ca, run by exile Pierre and > >>*claiming* > >>>to be *IgA Nephropathy Support Group*, which is in reality a ripoff > >>of > >>>the original IGAN *www.igan.org* which used to be frequented by > >>>specialists and patients alike. Seems to have bit the dust, which is > >>>sad. People visit, or rather are lured to www.igan.ca with the > >>>deliberate intent of deceiving them into thinking it is the old > >>group, > >>>without realising this group is heavily censored and a money making > >>>scam in reality, the advice given is poor, plagiarised or just plain > >>>incorrect. This deprives victims of a very serious degenerative > >>>disease of a valuable resource. It’s very likely this website was the > >>>cause for the closure of the original. > >>>The founder, Pierre often ridiculed serious research and claimed the > >>>best thing for IGAN was to do nothing! his pet hate was the *fish > >>oil* > >>>treatment. > >>>Does anyone know if the original resource is still available at > >>>igan.org? it would be wise if it were maintained and shown, even if > >>>just to serve as an impartial resource to counter the 500+ gullible > >>>victims igan.ca *claims*. > >>>It’s sad to see what one rogue element can do, when greed and avarice > >>>take over. > >>>Visit the site www.igan.ca and you’ll note he doesnt even mention the > >>>old resource contents, despite it being the foundation stone for IGAN > >>>research on the internet and available toe @everyone@ without > >>>subscription. > >>Be very careful about your accusations, Pierre is not averse to legal > >>action to silence what is now a very lucrative service. > >>When he first went off in a sulk and tried to take the ball with him, > >>he did make it fairly clear he was not Russ’s group www.igan.org > >>Heres an advert of his. > >>"" Pierre L posted the following article in the Patients Support Forum > >>http://brumley.com/renal/patientboard.html > >>Dated  : January 26, 2001 at 12:38:25 > >>Subject: Change in iga-nephropathy eGroup > >>http://brumley.com/renal/patientmessages/10021.html > >>On the internet, the more things change, the "less" they stay the same. > >>eGroups have now become Yahoo!Groups. So, if you have iga nephropathy, > >>the new group site is: > >>http://groups.yahoo.com/group/iga-nephropathy > >>or you can subscribe by emailing: > >>iga-nephropathy-subscr…@yahoogroups.com > >>This is not the same as the IgAN Foundation’s listserv. I am not > >>associated in any way with that organisation, and I don’t promote > >>unproven alternative therapies, tonsillectomies or anything else. Just > >>straight facts and help about IgAN."" > >>Note the last paragraph in particular. Then I’d advise you to visit > >>his website and list, you’ll find all information in that line is > >>suppressed & censored. In fact you’d be hard pushed to find any > >>serious research or questions on his site. > >>Something seriously wrong about a website that steers you clear of > >>impartiatlity, perhaps he thinks we are unable use our own minds for > >>decisons? I fear something more sinister :[[ > >>Lee > >It sure is. > >Do a search on google, you’ll see the snide remarks aimed at igan.org. > >Censorship certainly is alive and well at igan.ca. > >-quote- > >-Please note that from time to time, it may be necessary for new > >members or messages to be approved by the moderators. If this is the > >case when you subscribe, it shouldn’t take long for a moderator to > >approve. Controlled access is sometimes needed for everyone’s benefit > >and enjoyment of this group._ > >Lol, controlled access indeed. > >The website http://www.igan.ca/ is almost a copy of www.igan.org and > >certainly designed to give the impression it is the same respected > >people. > >IgA Nephropathy Support Group > >Where is Russ George these days, perhaps he should prosecute?. > >It’s all very well a misfit starting up their own group, but at the > >expense of established sites?, I don’t think so somehow. > """"""""""""""""""""""""""""""""""""""""""""""""""" > It would seem we need to BEWARE who we seek advice from. > WWW.IGAN.CA is an heavily censored site, this includes > the listserv iga-nephropathy @yahoogroups.com. It is also > run for financial reward, the profits of which solely support it’s founder > and host Pierre. > The original IgAN help group was www.igan.org hosted by > Russ George. > It is now proposed that the very valuable information on > that website is published once again, so that IgAN > sufferers have a resource they can trust once again. > please note we have no connection with igan.org this > is a public information service. > Much of the information here is direct from www.igan.org website > you will NOT find this valuable information at igan.ca, > because it has been censored by a misfit who left > the real IgAN support group in a sulk and decided to deceive us > with his own website full of misinformation. > Check it out yourselves and compare notes. > Most of the email addresses and links appear out of date > One day we hope Igan.Org will rise Phoenix like from the ashes > and Russ George again in the forefront of IgAN support.

Response:

On Tue, 06 Apr 2004 12:39:43 +0100, Hergte <sa…@home.nl> wrote:

It seems Pierre of igan.ca saw fit to cancel this message. I wonder why? (reprinted here for posterity) Could it be the exposure of his disclaimer " Please note that from time to time, it may be necessary for new members or messages to be approved by the moderators. If this is the case when you subscribe, it shouldn’t take long for a moderator to approve. Controlled access is sometimes needed for everyone’s benefit and enjoyment of this group." Don’t try canceling any more messages Pierre or you’ll come a cropper, usenet isn’t your own captive audience, here we make our own minds up what we want to read.. Now continue to read the rest of the message. – Hide quoted text — Show quoted text ->On Tue, 6 Apr 2004 05:19:22 -0400 (EDT), User Library ><libr…@cotse.net> wrote: >>On Tue, 6 Apr 2004 08:53:26 +0000 (UTC), libr…@cotse.net (User >>Library) wrote: >>>On Tue, 06 Apr 2004 09:29:33 +0100, David Crane <d…@yahoo.co.uk> >>>wrote: >>>>Any help groups out there or lists worth subscribing to? >>>>PS: not the french canadian site which seems to be a scam. >>>>David. >>>You of course refer to www.igan.ca, run by exile Pierre and >>*claiming* >>>to be *IgA Nephropathy Support Group*, which is in reality a ripoff >>of >>>the original IGAN *www.igan.org* which used to be frequented by >>>specialists and patients alike. Seems to have bit the dust, which is   >>>sad. People visit, or rather are lured to www.igan.ca with the >>>deliberate intent of deceiving them into thinking it is the old >>group, >>>without realising this group is heavily censored and a money making >>>scam in reality, the advice given is poor, plagiarised or just plain >>>incorrect. This deprives victims of a very serious degenerative >>>disease of a valuable resource. It’s very likely this website was the >>>cause for the closure of the original. >>>The founder, Pierre often ridiculed serious research and claimed the >>>best thing for IGAN was to do nothing! his pet hate was the *fish >>oil* >>>treatment. >>>Does anyone know if the original resource is still available at >>>igan.org? it would be wise if it were maintained and shown, even if >>>just to serve as an impartial resource to counter the 500+ gullible >>>victims igan.ca *claims*. >>>It’s sad to see what one rogue element can do, when greed and avarice >>>take over. >>>Visit the site www.igan.ca and you’ll note he doesnt even mention the >>>old resource contents, despite it being the foundation stone for IGAN >>>research on the internet and available toe @everyone@ without >>>subscription. >>Be very careful about your accusations, Pierre is not averse to legal >>action to silence what is now a very lucrative service. >>When he first went off in a sulk and tried to take the ball with him, >>he did make it fairly clear he was not Russ’s group www.igan.org >>Heres an advert of his. >>"" Pierre L posted the following article in the Patients Support Forum >>http://brumley.com/renal/patientboard.html >>Dated  : January 26, 2001 at 12:38:25 >>Subject: Change in iga-nephropathy eGroup >>http://brumley.com/renal/patientmessages/10021.html >>On the internet, the more things change, the "less" they stay the same. >>eGroups have now become Yahoo!Groups. So, if you have iga nephropathy, >>the new group site is: >>http://groups.yahoo.com/group/iga-nephropathy >>or you can subscribe by emailing: >>iga-nephropathy-subscr…@yahoogroups.com >>This is not the same as the IgAN Foundation’s listserv. I am not >>associated in any way with that organisation, and I don’t promote >>unproven alternative therapies, tonsillectomies or anything else. Just >>straight facts and help about IgAN."" >>Note the last paragraph in particular. Then I’d advise you to visit >>his website and list, you’ll find all information in that line is >>suppressed & censored. In fact you’d be hard pushed to find any >>serious research or questions on his site. >>Something seriously wrong about a website that steers you clear of >>impartiatlity, perhaps he thinks we are unable use our own minds for >>decisons? I fear something more sinister :[[ >>Lee >It sure is. >Do a search on google, you’ll see the snide remarks aimed at igan.org. >Censorship certainly is alive and well at igan.ca. >-quote- >-Please note that from time to time, it may be necessary for new >members or messages to be approved by the moderators. If this is the >case when you subscribe, it shouldn’t take long for a moderator to >approve. Controlled access is sometimes needed for everyone’s benefit >and enjoyment of this group._ >Lol, controlled access indeed. >The website http://www.igan.ca/ is almost a copy of www.igan.org and >certainly designed to give the impression it is the same respected >people. >IgA Nephropathy Support Group >Where is Russ George these days, perhaps he should prosecute?. >It’s all very well a misfit starting up their own group, but at the >expense of established sites?, I don’t think so somehow.

""""""""""""""""""""""""""""""""""""""""""""""""""" It would seem we need to BEWARE who we seek advice from. WWW.IGAN.CA is an heavily censored site, this includes the listserv iga-nephropathy @yahoogroups.com. It is also run for financial reward, the profits of which solely support it’s founder and host Pierre. The original IgAN help group was www.igan.org hosted by Russ George. It is now proposed that the very valuable information on that website is published once again, so that IgAN sufferers have a resource they can trust once again. please note we have no connection with igan.org this is a public information service. Much of the information here is direct from www.igan.org website you will NOT find this valuable information at igan.ca, because it has been censored by a misfit who left the real IgAN support group in a sulk and decided to deceive us with his own website full of misinformation. Check it out yourselves and compare notes. Most of the email addresses and links appear out of date One day we hope Igan.Org will rise Phoenix like from the ashes and Russ George again in the forefront of IgAN support.

Response:

Question:

How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same TIA Chris Q

Response:

– Hide quoted text — Show quoted text – How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same TIA Chris Q

Just a quick response, on my way to bed If you have a parent with T2, you have a 40% chance of being T2 at some stage in your life. VBH (T2) Dx(17-Oct-03)  : A1c 10.2 : 102Kg Latest                 : A1c: 6.1 : 86Kg : Met 3×500

Response:

Chris Quinn said this… How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon

Fucking well calm down. Gangrene is what happens when people neglect their diabetes, their limbs and then develop ulcers. It can take years for that sort of progression, and most diabetics never encounter it. Same for those with neuropathy who act like arseholes and walk round barefoot, then get splinters or other stuff embedded in their feet. If you go to the podiatrist every so often (get referred by the GP or hospital) they are trained to spot these problems early. Neuropathy is a multi-headed beast and as well as Al’s definitions it can be broken down again into motor, sensory and autonomic. It usually presents in the extremities first as numbness and possibly pain. Caught early enough, it can be tackled effectively. You have an ailment called back ache. If it persists, go to the bloody doctor and stop obsessing over medical encyclopaedias or imagining it’s terminal this that or the other. I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick.

And that drops every year. Well managed diabetics develop few if any complications. Those that do can be treated. Most of the complication sufferers are those from the bad old days of poor treatment or just plain old undiagnosed until too late diabetics. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of.

Just don’t drink it with sugary mixers. Vodka in moderation is no problem. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice?

Stick the word "might" into the above and tell her that. And get her checked too at some stage. There have been T2s reported in the US and here as young as 10. Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same

Step back and breathe. Being all neurotic won’t do you any good, in fact it raises the BG level. Keep an eye on the BGs, take care of your legs and the only time you need worry about gangrene is roughly about a week after you snuff it from old age. Ratty — Life’s Rich Pageant www.flyingrat.net

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How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?

No bloody chance of gangrene in 3 days. I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon

I wish I never mentioned  the different kinds, now. Let me stress, mononeuropathy is RARE. At most 1 in 50,000, and that’s the terminal idiots who take no care. You came here, so you are not a terminal idiot. I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick.

That poster is about the many many people who are the terminal idiot types. One thing has never ever been in short supply – morons. I know it is probably natural, but does it ever go away?

There is nothing *natural* about diabetes, that is a put-down offered by people who ought to know better. Some of us laugh at the diagnosis, make the necessary changes, and get on with life. Some reject it and suffer the consequences, you turned yourself into a hypochondriac.  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice?

She isn’t going to develop t2 at the age of 12. Encourage her to eat less sweeties, less crisps, more salad. Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same TIA

Diabetes is NOT a death sentence. Pleny of people live 50 or more years without any complications – but that’s the ones who reacted with their head, not their adrenal glands. Calm yourself, start thinking not fearing. Al.

Response:

Al Hardy said this… She isn’t going to develop t2 at the age of 12. Encourage her to eat less sweeties, less crisps, more salad.

I’d disagree there Al. T2 is starting to present in young adults, and in rare cases as early as 10. If there is a family history then I would say monitoring on an infrequent basis won’t hurt at all, and will do miracles if it catches it early. Obesity is the biggest factor in the equation. Ratty — Life’s Rich Pageant www.flyingrat.net

Response:

– Hide quoted text — Show quoted text – How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same TIA Chris Q

I was reading Gretchen Becker’s first year book last night.  I suggest you check out table 1.  I think it is on day 5 or somewhere close.  I’ll check later and post if I can.  It gives the probability over time of eye problems in relation to A1c.  If you check the left column – with an A1c of 6, you will notice that over the 15 years, the probability never goes over 2%. IOW control stops complications.  The bad figures that you have seen on posters are scare tactics to get people to deal with the condition.  This is because there are so many out there who do not deal with the beast and they are the ones who get hit hardest by the complications.  (See the table’s right hand column)  It does depend to some extent and some random factors(no, I am not saying that anyone who has complications has bad control), but generally speaking control avoids problems.  Many problems can also be reversed to a large extent if detected at diagnosis. As for telling your daughter, in most cases, people will not take a lot of notice under those circumstances.  12 year olds are bulletproof, or so they think!  If she is concerned though, take a look at Gretchen’s other book: http://www.amazon.co.uk/exec/obidos/ASIN/0717136612/qid=1079688744/sr… Paranoia and depression are common enough when you are dxed.  You are having to take in a lot of info and deal with a lot of life-changing stuff. However, as you learn more and get used to things, it’ll fade.  Knowledge is power so keep reading and you should be more assured.  Keep posting concerns though because hopefully the group can kill em all off. A quick question:  Does anyone have a link to stats on incidence of nephropathy and neuropathy in T2, related to A1c? VBH Dx(Oct-03)   : A1c 10.2 : 102Kg Latest            : A1c: 6.1 : 85Kg : Met 3×500

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Al Hardy said this… She isn’t going to develop t2 at the age of 12. Encourage her to eat less sweeties, less crisps, more salad. I’d disagree there Al. T2 is starting to present in young adults, and in rare cases as early as 10. If there is a family history then I would say monitoring on an infrequent basis won’t hurt at all, and will do miracles if it catches it early. Obesity is the biggest factor in the equation. Ratty

Somehwere lurking in the dark and mysterious depths of my HD I have a report claiming that young t2s are 18% likely to be wrongly dxed LADA. I’ll try to find it, but for the moment, Seti is more important to me. Certainly obesity is more important in t2 than genetics. Al.

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Chris Welcome to the club :) How long it takes you to accept your diagnoses is up to you with your attitude etc, the secret is to find out what is involved and adapt your eating habits. There is no reason not to have a drink or eat any particular food just as long as everything is done in moderation. I doubt you have any complications at your early stage of diagnoses. Look on the positive side Just think of all the people that have NO complications from their diabetes. Watch your diet and make sure you exercise. Best wishes Sue type1 39 yrs no complications

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How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon

Chris, rest assured that by keeping your bg’s as close to non diabetic numbers as possible, you can prevent complications.Even neuropathy has been known to disappear when control is gained. If you are deadly serious about avoiding complications then you should find gaining that control a lot easier.  It isn’t like smoking where you have a few years up your sleeves, diabetes related damage can be pretty quick but certainly not overnight.  As long as your current aim is to get bg’s down to normal relatively quickly then you have a better chance than a lot of people who remain ignorant of proper diabetic care.

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– Hide quoted text — Show quoted text – Al Hardy said this… She isn’t going to develop t2 at the age of 12. Encourage her to eat less sweeties, less crisps, more salad. I’d disagree there Al. T2 is starting to present in young adults, and in rare cases as early as 10. If there is a family history then I would say monitoring on an infrequent basis won’t hurt at all, and will do miracles if it catches it early. Obesity is the biggest factor in the equation. Ratty Somehwere lurking in the dark and mysterious depths of my HD I have a report claiming that young t2s are 18% likely to be wrongly dxed LADA. I’ll try to find it, but for the moment, Seti is more important to me. Certainly obesity is more important in t2 than genetics. Al.

There’s a theory that the obesity is caused by the genetics. VBH Dx(Oct-03)   : A1c 10.2 : 102Kg Latest            : A1c: 6.1 : 85Kg : Met 3×500

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Thanks for the virtual slap round the gob – it’s probably exactly what I needed.  I was having a bad night last night – most of it non-DM related, and obviously hit the self pity stage with a vengance. I have had a crap week at work with viruses and such hitting our systems – I am the IT department, so I’ve been working my nuts off.  I am having a bad time at home – big meeting of shit and fan last night, then the diagnosis on top, and I can’t even go out and get pissed to take my mind off it all. Such is life! I know that forewarned is forearmed, so I’m trying to do the osmosis bit on all of the info doing the rounds, and am surprised how little I know – I thought I had a good idea of what DM was all about previously, having done a biology degree and having it in the family, but how wrong was I!  I realised that I have never really discussed DM with my mum – type 2 for a couple of years, with eye problems – she was diagnosed several years after I moved out, and I don’t even know what medication she’s on!  I suppose it wasn’t relevant to me until this week – just ask her how she’s doing each time I visit, and stop buying her choccies for christmas etc.  She’s back from holiday today, so I’ll be picking her brain over the weekend I suppose as a scouser that someone should be telling me to Calm Down!  Did you know that today is International Scouse day?  I can’t even have a bowl of that – too many root veggies! My BG seems to be getting better – fasting level down to about 12 today after being 18.6 at diagnosis, so hopefully things will start to improve. Keeping my chin (and hopefully my pecker) up Cheers Chris

– Hide quoted text — Show quoted text – Chris Quinn said this… How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon Fucking well calm down. Gangrene is what happens when people neglect their diabetes, their limbs and then develop ulcers. It can take years for that sort of progression, and most diabetics never encounter it. Same for those with neuropathy who act like arseholes and walk round barefoot, then get splinters or other stuff embedded in their feet. If you go to the podiatrist every so often (get referred by the GP or hospital) they are trained to spot these problems early. Neuropathy is a multi-headed beast and as well as Al’s definitions it can be broken down again into motor, sensory and autonomic. It usually presents in the extremities first as numbness and possibly pain. Caught early enough, it can be tackled effectively. You have an ailment called back ache. If it persists, go to the bloody doctor and stop obsessing over medical encyclopaedias or imagining it’s terminal this that or the other. I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick. And that drops every year. Well managed diabetics develop few if any complications. Those that do can be treated. Most of the complication sufferers are those from the bad old days of poor treatment or just plain old undiagnosed until too late diabetics. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. Just don’t drink it with sugary mixers. Vodka in moderation is no problem. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Stick the word "might" into the above and tell her that. And get her checked too at some stage. There have been T2s reported in the US and here as young as 10. Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same Step back and breathe. Being all neurotic won’t do you any good, in fact it raises the BG level. Keep an eye on the BGs, take care of your legs and the only time you need worry about gangrene is roughly about a week after you snuff it from old age. Ratty — Life’s Rich Pageant www.flyingrat.net

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How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next? No bloody chance of gangrene in 3 days.

Nah, it takes 4 days at least. ;-p I see Ratty has already done a bit of virtual slapping (shame I enjoy doing that ;-) ) so I’ll just add in that the one thing you cannot afford to loose is your sense of humour. You now know exactly what you have to face but none of it is going to cause you to keel over tomorrow or the next day.   Look on the bright side, you could be run over by a bus well before you ever get close to dying of something diabetes related. ;-p Soon you will settle into a ‘normal’ routine and other hassles will take over – life goes on, even when you have diabetes. — Emma – The Chocolate Monster The Alternative Gallery – http://altgallery.shows.it ChocMonsters Ebay clearout has started!- http://tinyurl.com/3xkrz

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I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice?

Do talk to her, explain what has happened and how it is going to effect your life from now on. Let her see your testing equipment and how it works. Hopefully you won’t be experiencing hypos but it might be good to warn her how to deal with something just in case anything happens. She’s probably already picked up that something is going on, we all know kids aren’t stupid. She might even have friends at school who have relations with diabetes who she can share experiences with. As for her, then I’d just keep an eye on what she eats and encourage her to do more exercise. Maybe now the days are getting lighter you could go for walks together or even get a couple of bikes? — Emma – The Chocolate Monster The Alternative Gallery – http://altgallery.shows.it ChocMonsters Ebay clearout has started!- http://tinyurl.com/3xkrz

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As a footnote on kids picking things up, you do not want her getting the wrong idea and thinking it is something worse than it is so an explanation without too much delay might be better to avoid any panic. Oh and as well as relatives of friends she may even know a T1 personally. (I did for a while at primary)

Kids pick up vibes before they pick up words. Make sure you’ve calmed down and relaxed a little yourself before you try to reassure her. Cheers, Alan, T2 d&e, Australia. — Everything in Moderation – Except Laughter.

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– Hide quoted text — Show quoted text – I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Do talk to her, explain what has happened and how it is going to effect your life from now on. Let her see your testing equipment and how it works. Hopefully you won’t be experiencing hypos but it might be good to warn her how to deal with something just in case anything happens. She’s probably already picked up that something is going on, we all know kids aren’t stupid. She might even have friends at school who have relations with diabetes who she can share experiences with. As for her, then I’d just keep an eye on what she eats and encourage her to do more exercise. Maybe now the days are getting lighter you could go for walks together or even get a couple of bikes? — Emma – The Chocolate Monster

As a footnote on kids picking things up, you do not want her getting the wrong idea and thinking it is something worse than it is so an explanation without too much delay might be better to avoid any panic. Oh and as well as relatives of friends she may even know a T1 personally. (I did for a while at primary) VBH Dx(Oct-03)   : A1c 10.2 : 102Kg Latest            : A1c: 6.1 : 85Kg : Met 3×500

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I had scouse in me mums last night paid for it with a 12.5 spike last nite but I can only give up so many things in life ;-) . its good to read and be paranoid about all the things that can happen to us because if I didn’t read here I would never know what to as doctor about. I might not have all the debilitating dieses but from a prev post (Nwuropathy) I am having a test to see if statin is affecting me Dr just added it on to regular test to review my medication. Allen

– Hide quoted text — Show quoted text – How long does it take for the paranoia induced by a new diagnosis to subside?  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice? Thanks for listening – I can see there are a lot of good people out there with advice to give – it is much more relevant if I know it’s come from someone who’s gone through the same TIA Chris Q

Response:

CUT ONLY FOR BREVITY. How long does it take for the paranoia induced by a new diagnosis to subside?

Don’t worry about moaning, it’s normal. Anyway you’ll be long dead before the paranoia goes away :-) Donnie.

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00:17:52 Fri, 19 Mar 2004alt.support.diabetes.uk How long does it take for the paranoia induced by a new diagnosis to subside?

The shock is something that many people never get over, because they go into ‘denial’ instead… others, who dwell on it, get depressed, then come out the other side when they decide to take control and develop a strategy that can work for who they are, and gain in self-esteem as they improve their health. You decide.  I was only confirmed on Monday, and now I’m worried about a pain in my toe that appeared today – is gangrene next?  I have an ache in the back of my thigh – is it Mononeuropathy? (see thread called Nwuropathy). Just like reading the medical encyclopedia, but I have something to base the fears upon

Welcome to the club, I suppose. :-( The good news is, it needn’t be too bad, or can at least be limited or delayed a lot, many of us think. I’m reading as much as I can, on the web, in this NG, just got the Gretchen Becker book from Amazon etc, and I’m scaring myself shitless!

Good! So you’re going to do something about it, are you?  I saw a poster in the docor’s giving the percentages of diabetics that suffer various complications such as blindness and impotence and felt sick.

It is a very serious condition, but you do have the potential to have a considerable degree of control over it, in fact. Note that at diagnosis, most diabetics, it appears, may have been out of control for an average of 6.5 years and many already have significant damage to various organs as a result. Some of this can be reversed with good control. I know it is probably natural, but does it ever go away?  I feel like reaching for the bottle of duty free 57% vodka I got a few months ago, but haven’t opened yet.  I know I shouldn’t, but I have felt like it.

Vodka, if not sweet, being alcoholic, might lower your blood glucose levels; a glass with a meal may actually help you until you learn how to avoid those foods that spike your BG levels.  I’ll give it to my mate at the weekend to remove the temptation.  He’s going to love me – there are probably another couple of bottles about the house that I should also dispose of. The thing that’s worrying me most is the thought that my 12 year old daughter is next in line – there have been at least 3 generations in the family with T2, so I assume she is high risk.  She’s also a bit on the chunky side.  I’ve not talked to her about the diagnosis yet – I think she’s old enough to know what’s wrong with me, but don’t want to frighten her with the old "if you don’t lose weight, you’ll end up like this too" routine. Any advice?

Start feeding her tuna/cheese/chicken/ham salads, and fewer starchy foods like rice, pasta, potato, cereals, biscuits, sweet snacks, just in case. The old fashioned dietary advice seems the best, in my opinion: eat the meat, skip the potatoes. Get her to walk everywhere, when it’s safe. Don’t push her to take control – like most people, when preached at, she will resent it and rebel: the worst possible outcome, and anyway, she probably isn’t diabetic yet. Instead, lead by example, and maybe talk casually, when it comes up in natural conversation only, about the terrible consequences that can flow from being overweight enough to bring on the disease (only a few kilos may be enough) – but most crucially, without pointing the finger at her. She will make her own mind up. Ideally, you would probably want her to ask you how to help herself, rather than have you trying to force-feed advice on her. A softly-softly approach is my recommendation, therefore. There’s plenty of time. Read Atkins and Bernstein, perhaps. So, I hope you are going to set a good example, first of all. — London, UK              Home Page:      http://www.tucana.demon.co.uk                          Web Shop:      http://buy.at/tucana           Mobile Phone Ring Tones:      http://www.ringamoby.com "Everything I do and say with anyone makes a difference." Gita Bellin

Response:

– Hide quoted text — Show quoted text – Can’t add much to the many fine words here except welcome to the group, stick around and you’ll stay sane and learn lots. I note you’re a techy too – there’s a lot in here so feel free to rant about having a shite IT day, but don’t expect much sympathy because we’ve all been there, done that, reinstalled and rebooted for the ‘n’th time today, repatched the kernel, done yet another Windows update, found that dodgy patch lead at last, etc.! All the best NK T2 on pills – lots of them, but they work.

Cheers mate, Problems with our till systems (DOS workstations on an NT4 network), Netsky and Mydoom on three workstations today, trying to get time to populate our new website, track down potential finger in the till activity, setting up new users, handling phone enquiries coz we’re short staffed, and coping with users who stuff up receipt printers and things, then hide them in the hope that no-one will notice.  And that’s all before lunch!  Prior to diagnosis I would probably have worked straight through without a lunch break, having had no breakfast, not eating until about 9.00pm.  I am now forcing myself to spread the food out during the day to smooth out the BG graph.  I am getting a bike tomorrow to start on the exercise – pity I work to far away from home to ride there.  I’ll also have to track down the nearest pool to work and see if I can make it there before or after work I’m in a much better mood today, so no more whinging for a while Chris Q

Response:

Can’t add much to the many fine words here except welcome to the group, stick around and you’ll stay sane and learn lots. I note you’re a techy too – there’s a lot in here so feel free to rant about having a shite IT day, but don’t expect much sympathy because we’ve all been there, done that, reinstalled and rebooted for the ‘n’th time today, repatched the kernel, done yet another Windows update, found that dodgy patch lead at last, etc.! All the best NK T2 on pills – lots of them, but they work.

Response:

Cheers mate, Problems with our till systems (DOS workstations on an NT4 network),

Well there’s your first problem – get rid of that NT4 stuff and run off user-level shares from boxes running ME. Won’t be more reliable (really!), but at least you can edit your holiday videos while fault finding. Next you’ll be saying it’s DOS 2 or 2.10 (remember it well). Prior to diagnosis I would probably have worked straight through without a lunch break, having had no breakfast, not eating until about 9.00pm.

Hmmm – TAKE YOUR BREAKS and eat regularly. That’s not just a diabetic thing neither; you’re entitled to your breaks – use them. Have fun, block those thar ports and check the AV stuff’s up to date! NK

Response:

When I arrived, the main data "server" was a windows 98 box with 32Mb of RAM with a shared drive – the domain server was a pentium 150 running NT4 with 64Mb of RAM, serving about 25 workstations and 10 tills, plus acting as an Exchange server!  Buying in kit from a bankrupt group of old folks homes doubled our server capacity and power, and gave us an extra 10 workstations – 400 quid the lot, including a fax, photocopier and half a dozen desks! The tills are Dos 6.2 – none of the people that use them are old enough to have ever used Dos – I think of it as an extra security feature! The AV was supposed to be up to date – a managed auto-updating setup from BT of McAfee

Question:

Thanks Larry and Pierre for your information. It was very helpful and I have been reading your posts to this news group for some time with much interest. I should have clarified it Larry but I meant that I would be at the hospital 8 hours for the pre-screening/evaluation only. I realize I will be hospitalized several days post ransplant.   :-) Thank you for pointing me to the transplant online guide. It really cleared up some questions. I don’t like the idea of that huge IV in my jugular vein for several days though. Ugh! Pierre, thatnks for letting me know what to expect at the evaluation. I thought it might be much worse than what you listed. Whew! I’m going to have to figure out what to do about traveling for the follow up exams. I live in Western S.C. and the transplant center is in Charleston 4 1/2 hours away. I guess I may have to get a rental room there for a few weeks to be close by. I don’t have a vehicle that is reliable and I have phobias about driving by myself. So my friend will drive me down there and stay with me for a short while, but I don’t want her to miss too much work. Thanks again. Beau

Response:

On Mon, 10 Feb 2003 14:55:16 -0500, "G.B. Langer" <gblangersendnos…@charter.net> wrote: >I don’t like the idea of that huge IV in my jugular vein >for several days though. Ugh!

There isn’t a huge IV in your jugular vein for several days when you have a transplant.  The catheter I was speaking of is put in through your urethra and into your bladder for several days.  My bladder had shrunk to only 100 cc in size due to almost 9 years of atrophy and the Foley catheter was left in for almost 2 weeks in my case.  It rubbed me raw.  Most catheters are removed prior to your release from the hospital.  I wore mine home for an additional 10 days. Good luck. Larry

Response:

On Mon, 10 Feb 2003 21:46:20 GMT, Larry Krzewinski <larry.kzREMOVE-T…@gte.net> wrote: >There isn’t a huge IV in your jugular vein for several days when you >have a transplant.

Oops.  There was an IV in my jugular vein for a day.  They pump as much saline through you as possible to really give that new kidney a workout.  I had forgotten about that.  I don’t remember it being uncomfortable so I must have forgotten about it earlier. Sorry. Larry

Response:

You’re welcome Beau. Good luck with your evaluation. Pierre "G.B. Langer" <gblangersendnos…@charter.net> wrote in message

news:v4g0ubcj573baa@corp.supernews.com… – Hide quoted text — Show quoted text -> Thanks Larry and Pierre for your information. It was very helpful and I have > been reading your posts to this news group for some time with much interest. >[snip] > Beau

Response:

On Mon, 10 Feb 2003 10:16:52 -0500, "G.B. Langer" <gblangersendnos…@charter.net> wrote: >I would like to know what the dietary restrictions are after kidney >transplant? >Also I am pre-dialysis and pre-transplant. I am waitng to be notified for my >pre-transplant screening/typing appointment. Can anyone please tell me what >procedures are done? I was told I would be at the hospital for about 8 >hours. I’m a bit nervous about this whole thing. Thanks.

Other than probably being told to avoid grapefruit and grapefruit juice due to their interaction with the immunosuppressant drugs you can have everything else.  An excellent guide to kidney transplantation and use and care of your new kidney can be found online at: http://www.healthcare.ucla.edu/transplant/pdfs/dcbook1.pdf My kidney transplant was a walk in the park.  I was hospitalized for four days and had very little pain.  The worst part was the catheter used post transplant so that you don’t hold your urine until the stitches heal.  I sincerely doubt that you will only be in the hospital for 8 hours.  After spending 5 1/2 months in the hospital with my liver transplant my kidney transplant was not a big deal. Most folks breeze right through it. Larry Liver Transplant July 1992 Kidney Transplant March 2001 Hemodialysis 8 years and 8 months

Response:

"G.B. Langer" <gblangersendnos…@charter.net> wrote in message

news:v4fgkcpm9a8kc0@corp.supernews.com… > I would like to know what the dietary restrictions are after kidney > transplant? > Also I am pre-dialysis and pre-transplant. I am waitng to be notified for my > pre-transplant screening/typing appointment. Can anyone please tell me what > procedures are done? I was told I would be at the hospital for about 8 > hours. I’m a bit nervous about this whole thing. Thanks.

Transplant evaluation basics: Appointment with the transplant coordinator Appointment with a transplant nephrologist Lot’s of bloodwork (for blood typing, CBC, HIV, hepatitis, and just about anything you can think of) Appointment with renal social worker TB skin test Appointment with the transplant surgeon (not the same as transplant nephrologist) In addition to the above (which all occurred over a 2 month period), I spent a day a day at the hospital where kidney transplants are done (just as an out-patient walking from one department to another). This is what I did: – more blood work (tissue typing I was told) – full abdominal ultrasound – heart stress test – pulmonary function test (probably only because of asthma) Can’t think of anything else. What’s done at the hospital can be done in the same day, but as for the other things, it can take a while before you’ve seen everyone you have to see. Maybe it’s done differently elsewhere, but the various appointments depended on each person’s own appointment book. Pierre IgA Nephropathy Support Group www.igan.ca

Response:

I would like to know what the dietary restrictions are after kidney transplant? Also I am pre-dialysis and pre-transplant. I am waitng to be notified for my pre-transplant screening/typing appointment. Can anyone please tell me what procedures are done? I was told I would be at the hospital for about 8 hours. I’m a bit nervous about this whole thing. Thanks.

Response:

Question:

I have a friend who was diagnosed T2 / prediabetic after a wound refused to heal. Fasting bg was around 8. Is not controlling it with diet and exercise, fasting BG now 5.4 and woud healed. Cheers — Kevin Houstoun Type I since August 2002 http://www.altkb.com

– Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?   I am a 61-yr old T1 in good control.  I don’t seem to have any problems healing.  (uneventful artificial hip and trigger finger surgery)  I received a 1-cm diameter, 3rd degree burn on my hand this year.   It took a month to completely heal with no unexpected developments.  I once saw an assertion that our immune system is prone to paralysis when bG hits 180 mg/dL  (10 mmol/L).  I have seen several assertions that high sugar "feeds" the bacteria and hampers healing.   No citations given, no evidence that the coments came from  authoritative sources.  I don’t know what you mean by "inflammation".    I don’t have any that I know of. Regards   Old Al

Response:

Over the years there have been countless members on this ng who have reported a variety of symptoms, like neuropathy and skin conditions and kidney conditions, being arrested or significantly reduced, if not reversed. I am not certain how reducing your bg would go in reversing those conditions. Also there are complications that cannot be undone, however you cannot go wrong if you try to bring your bg as close to normal as possible. That is the cornerstone in regaining any control over your life. Henry Mydlarz Melbourne Australia

– Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

Response:

I have infected gums on dx (HbA1 approx 11) that healed once I got my bloodsugars under control (HbA1c approx 6). — Kevin Houstoun Type I since August 2002 http://www.altkb.com

– Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

Response:

Guy thank you for the information, I appriciate it. Before I started getting high postprandial glucose readings, I had reactive hypoglycemia after eating high carb meals; what I am wondering now is if I was doing damage back then even with very short term high postprandial glucose (my BG was always back to 70-80 after an hour and I never knew how high the "highs" were after eating high carb because I only tested at the 1hr mark).  How high could my "highs" could have been if I was back down to 70-80 an hour later?

Much depends on what it was you ate and your own particular. You should try monitoring your 2 hour levels. I find that with some foods I peak at about 1 hour, others I peak closer to 2 hours. If I only measured my 1 hour readings, I would miss a lot of highs. This is not to say you need to do 1 hour *and* 2 hour readings for *every* meal, but you should test at a few different times to get a picture of how your body responds to different foods. From other posts you have indicated that the cost of test strips is a problem for you. I suggest you have a chat to your doctor about this. You might be able to switch to a meter that uses cheaper strips. Also remember that as you get more familiar with your condition, you will need to test less. Fortunately for us Australians, test strips are heavily subsidised, so it’s not something I have to worry about. Lets say I was high 160 and exercised it down to a reasonable level, does that insure no damage or it the damage instant once the BG reaches these high values?

No one really knows for sure. Based on this and your other posts, I doubt you have anything to worry about. Cheers, John Carney.

Response:

Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease?

I’m no doc, but I AM an expert at opening nice big fat, wide and pretty gruesome holes and gashes in my little diabetic body. I’ve never had a single one NOT heal normally. After having a few stiches in a couple of particularly nasty leg gashes a while back, the doc at the ER said that as I was diabetic they’d look at taking the stitches out in 10 days. I wasn’t in a position to wait for 10 days, so I went back FOUR days later and out came the stitches and off I went on holiday. Healed a treat, but I DO make sure my BG’s are WELL within those a non diabetic would see. My personal thoughts on this subject are simple. Run high BG’s and you won’t heal well. Run normal BG’s and you’ll heal AS normal. Beav

Response:

- Hide quoted text — Show quoted text – Today, except for permanent damage that happened during  out of control times, I have no real added problems. My nerve damage discomfort is almost gone but I can tell it is there when the blood glucose exceed  apx 160. At one time l;egs were covered with about 80% lesions below the knees.  A lot of this was fungus infections that the docs did not recognize. I could fill this page with problems. Was it caused by high blood sugar?   All I know is that it became controllable when the blood sugars came under control.   That is why I yell so much about blood sugar control.  Control is not eating and using one reading to say you have control.  it is 24/7. I get tired of seeing so many gimmicks to avoid the discipline necessary for a diabetic like me. Today I am fighting with GI and digestion problems probably due to damage of nerves in my GI tract. It is hard to balance a hypo condition and avoiding high blood sugars.  Very touchy. But it is too late for me to close the barn door.  Why do people fool around with gimmicks and games. You cannot back track. Yes, high blood sugars are the key to slow wound healing and ulcer is many cases. Yes, good blood sugar control  can reverse the course of these problems in many cases. Yes without good blood sugar control you can develop a number of problems with bacterial infection, yeast,fungal, and parasite problems. I know of no alternative to blood sugar control.  The tools and knowledge exists. Yes other things can cause health problems in diabetics but it is most probable thing if your blood sugars run high.                                                 Guy.

Guy thank you for the information, I appriciate it. Before I started getting high postprandial glucose readings, I had reactive hypoglycemia after eating high carb meals; what I am wondering now is if I was doing damage back then even with very short term high postprandial glucose (my BG was always back to 70-80 after an hour and I never knew how high the "highs" were after eating high carb because I only tested at the 1hr mark).  How high could my "highs" could have been if I was back down to 70-80 an hour later? Lets say I was high 160 and exercised it down to a reasonable level, does that insure no damage or it the damage instant once the BG reaches these high values? Thanks, Tess

Response:

Outside of healing is disease itself, some very large studies say why you need BSI control……. The ADA Summary of the UKPDS: 1) The UKPDS results establish that retinopathy, nephropathy, and possibly neuropathy are benefited by lowering blood glucose levels in type 2 DM, with intensive therapy that achieved a median HbA1c of 7.0% compared to conventional therapy with a median HbA1c of 7.9%. The overall microvascular complications rate was decreased by 25%. 2) These results increase the evidence that hyperglycemia causes, or is the major contributor, to these complications. Epidemiological analysis of the UKPDS data showed a continuous relationship between the risks of microvascular complications and glycemia, such that for every percentage point decrease in the HbA1c, there was a 25% relative reduction in complications. 3) The results demonstrate that the risks of complications can be significantly lowered even in the range of hyperglycemia where HbA1c levels are less than 8.0%. There was no evidence whatsoever of any glycemic threshold for any microvascular and cardiovascular complications above normal glucose levels (ie. HbA1c 6.2%) 4) These results confirm previous conclusions that lowering blood glucose would be beneficial based on observational studies, pathological studies, and on three randomized clinical trials: the DCCT, the Stockholm Diabetes Intervention Study, and the Japanese study.

– Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

Response:

Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease?

I have problems with healing at times.  Other times I don’t.  It depends on what the condition is that needs healing.  Doesn’t seem to have a lot to do with my BG. Also is inflammation reduced/eliminated with good control?

AKAIK, I don’t think inflammation has anything to do with diabetes. — Type 2 http://users.bestweb.net/~jbove/ Julie Bove, posting from new account

Response:

– Hide quoted text — Show quoted text – Today, except for permanent damage that happened during  out of control times, I have no real added problems. My nerve damage discomfort is almost gone but I can tell it is there when the blood glucose exceed  apx 160. At one time l;egs were covered with about 80% lesions below the knees.  A lot of this was fungus infections that the docs did not recognize. I could fill this page with problems. Was it caused by high blood sugar?   All I know is that it became controllable when the blood sugars came under control.   That is why I yell so much about blood sugar control.  Control is not eating and using one reading to say you have control.  it is 24/7. I get tired of seeing so many gimmicks to avoid the discipline necessary for a diabetic like me. Today I am fighting with GI and digestion problems probably due to damage of nerves in my GI tract. It is hard to balance a hypo condition and avoiding high blood sugars.  Very touchy. But it is too late for me to close the barn door.  Why do people fool around with gimmicks and games. You cannot back track. Yes, high blood sugars are the key to slow wound healing and ulcer is many cases. Yes, good blood sugar control  can reverse the course of these problems in many cases. Yes without good blood sugar control you can develop a number of problems with bacterial infection, yeast,fungal, and parasite problems. I know of no alternative to blood sugar control.  The tools and knowledge exists. Yes other things can cause health problems in diabetics but it is most probable thing if your blood sugars run high.                                                 Guy. Guy thank you for the information, I appriciate it. Before I started getting high postprandial glucose readings, I had reactive hypoglycemia after eating high carb meals; what I am wondering now is if I was doing damage back then even with very short term high postprandial glucose (my BG was always back to 70-80 after an hour and I never knew how high the "highs" were after eating high carb because I only tested at the 1hr mark).  How high could my "highs" could have been if I was back down to 70-80 an hour later? Lets say I was high 160 and exercised it down to a reasonable level, does that insure no damage or it the damage instant once the BG reaches these high values? Thanks, Tess

Tess I doubt if you have damage.  Try to keep it that way. People like me get into blood glucose level of 200 to 500 range and thing start to happen. Even today a lot of us see varying blood glucose levels.  With no insulin and very hypo prone it is a difficult job.   If I were able to do it that way I would watch the food amounts carefully. to control the problem.                                       Guy

Response:

- Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?   I am a 61-yr old T1 in good control.  I don’t seem to have any problems healing.  (uneventful artificial hip and trigger finger surgery)  I received a 1-cm diameter, 3rd degree burn on my hand this year.   It took a month to completely heal with no unexpected developments.  I once saw an assertion that our immune system is prone to paralysis when bG hits 180 mg/dL  (10 mmol/L).  I have seen several assertions that high sugar "feeds" the bacteria and hampers healing.   No citations given, no evidence that the coments came from  authoritative sources.  I don’t know what you mean by "inflammation".    I don’t have any that I know of. Regards   Old Al

Hi Al, I have read many times that diabetes is a disease in which there is much inflammation going on all the time. Someone here even told me that, forgot who. I was hoping someone might give me more insite about it. I suppose the only thing to help with this inflammation would be supplemental antioxidants, exercise, and perhaps stress reduction. But there are so many different antioxidants that help in many different ways-which ones I am wondering are best?

Response:

Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

  I am a 61-yr old T1 in good control.  I don’t seem to have any problems healing.  (uneventful artificial hip and trigger finger surgery)  I received a 1-cm diameter, 3rd degree burn on my hand this year.   It took a month to completely heal with no unexpected developments.  I once saw an assertion that our immune system is prone to paralysis when bG hits 180 mg/dL  (10 mmol/L).  I have seen several assertions that high sugar "feeds" the bacteria and hampers healing.   No citations given, no evidence that the coments came from  authoritative sources.  I don’t know what you mean by "inflammation".    I don’t have any that I know of. Regards   Old Al

Response:

– Hide quoted text — Show quoted text – Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?  I am a 61-yr old T1 in good control.  I don’t seem to have any problems healing.  (uneventful artificial hip and trigger finger surgery) I received a 1-cm diameter, 3rd degree burn on my hand this year.   It took a month to completely heal with no unexpected developments. I once saw an assertion that our immune system is prone to paralysis when bG hits 180 mg/dL  (10 mmol/L).  I have seen several assertions that high sugar "feeds" the bacteria and hampers healing.   No citations given, no evidence that the coments came from  authoritative sources. I don’t know what you mean by "inflammation".    I don’t have any that I know of. Regards  Old Al All can comment on is my case.  We all kind of assertions that

seem to faulty to me. Today, except for permanent damage that happened during  out of control times, I have no real added problems. My nerve damage discomfort is almost gone but I can tell it is there when the blood glucose exceed  apx 160. At one time l;egs were covered with about 80% lesions below the knees.  A lot of this was fungus infections that the docs did not recognize. I could fill this page with problems. Was it caused by high blood sugar?   All I know is that it became controllable when the blood sugars came under control.   That is why I yell so much about blood sugar control.  Control is not eating and using one reading to say you have control.  it is 24/7. I get tired of seeing so many gimmicks to avoid the discipline necessary for a diabetic like me. Today I am fighting with GI and digestion problems probably due to damage of nerves in my GI tract. It is hard to balance a hypo condition and avoiding high blood sugars.  Very touchy. But it is too late for me to close the barn door.  Why do people fool around with gimmicks and games. You cannot back track. Yes, high blood sugars are the key to slow wound healing and ulcer is many cases. Yes, good blood sugar control  can reverse the course of these problems in many cases. Yes without good blood sugar control you can develop a number of problems with bacterial infection, yeast,fungal, and parasite problems. I know of no alternative to blood sugar control.  The tools and knowledge exists. Yes other things can cause health problems in diabetics but it is most probable thing if your blood sugars run high.                                                 Guy.

Response:

Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

Response:

Just curious, if it’s the high blood glucose that causes the problems with healing or some other aspects about the disease? Also is inflammation reduced/eliminated with good control?

For some, the high bg causes circulatory system damage which increases the problems with healing. However, just the high bg seems to do a lot by itself. I have no idea on the inflammation issue. Cindy Wells

Response:

Question:

Several People wrote; …off topic perhaps but with all the warnings and grousings about "hot" laptops, I can add a bit from my own professional experience as a computer guy.  Some brands use "passive cooling" for residual heat, mainly from the battery, and since the battery is almos always on the bottom, the bottom of these laptops can get surprisingly hot.  This is, of course, not very good for you lap, but it is also not very good for the electronics.  Transistors and other micro-circuit elements fail MUCH MUCH faster when hot then when room temp. Mean time to failue drops with something like the fourth power of degrees over a threshold operating temperature, so a lifetime of 100,000 hours can shrink PDQ.  Some brands use either active cooling, via a fan, or else well design convective cooling and of these, you want one that has the air ventilation slots on the sides of the unit, NOT the bottom.  I’ve got no stock of other interest in Dell, but they tend to do a good job on keeping the heat under control. esp on the larger models.  The skinnier and lighter the laptop is the less thermal mass there is to moderate the heat and the less room there is for convective air currents to cool the insides.   I don’t expect anyone to rush out and buy a new laptop based on this, but next time you DO, check the cooling technology before you buy and scald your laps. It’s really just a matter of good engineering, and knowing what to look for. If you already have a lap burner, consider getting a new battery, since they tend t be more efficient when new and will produce les waste heat.   —garyFostel—

Response:

Larry said: I am just wondering what I can expect?  Will by fistula arm be totally imobile, or will I be able to work on my laptop? I cross stitch, type on my laptop, write and do school work and whatever else I can find to keep me busy while on dialysis.  I’ve never had a problem with moving my arm during my treatment. ************************ "Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind" . ~Dr. Seus

Response:

This is highly dependent on where your fistula is. If they have to insert a needle near the elbow, the arm isn’t very mobile. While I’m, on the machine, I can’t do anything that requires two hands. Pierre "Michelle" <girlie…@aol.comdntudare> wrote in message

news:20021222193006.23385.00000229@mb-mp.aol.com… – Hide quoted text — Show quoted text -> Larry said: > I am just wondering what I can expect?  Will by fistula arm be totally > imobile, or will I be able to work on my laptop? > I cross stitch, type on my laptop, write and do school work and whatever else I > can find to keep me busy while on dialysis.  I’ve never had a problem with > moving my arm during my treatment. > ************************

Response:

Pierre said: This is highly dependent on where your fistula is. If they have to insert a needle near the elbow, the arm isn’t very mobile. While I’m, on the machine, I can’t do anything that requires two hands. Pierre I have an upper arm AV graft in my right arm.  I had a lower forearm AV graft but it clotted off during transplant surgery and when my transplant rejected they put this one in.   It is not positional at all and I can freely move my arm as needed.   It was easier to do things on the machine when my access was in the left arm though as I am right handed. ************************ "Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind" . ~Dr. Seus

Response:

Well my boyfriend has a graft and is able to move both hands when on the machine "Pierre L" <pierro…@hotmail.com> wrote in message

news:WotN9.777$Eh5.223924@news20.bellglobal.com… – Hide quoted text — Show quoted text -> This is highly dependent on where your fistula is. If they have to insert a > needle near the elbow, the arm isn’t very mobile. While I’m, on the machine, > I can’t do anything that requires two hands. > Pierre > "Michelle" <girlie…@aol.comdntudare> wrote in message > news:20021222193006.23385.00000229@mb-mp.aol.com… > > Larry said: > > I am just wondering what I can expect?  Will by fistula arm be totally > > imobile, or will I be able to work on my laptop? > > I cross stitch, type on my laptop, write and do school work and whatever > else I > > can find to keep me busy while on dialysis.  I’ve never had a problem with > > moving my arm during my treatment. > > ************************

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It depends on were its at in the arm. Depends on were the techs stick you on your arm.Yes my man does it every time he goes to treatment.. "Michelle" <girlie…@aol.comdntudare> wrote in message

news:20021222193006.23385.00000229@mb-mp.aol.com… – Hide quoted text — Show quoted text -> Larry said: > I am just wondering what I can expect?  Will by fistula arm be totally > imobile, or will I be able to work on my laptop? > I cross stitch, type on my laptop, write and do school work and whatever else I > can find to keep me busy while on dialysis.  I’ve never had a problem with > moving my arm during my treatment. > ************************ > "Be who you are and say what you feel, because those who mind don’t matter and > those who matter don’t mind" . ~Dr. Seus

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You must keep the arm still because moving it will effect the flow pressure, and shut off the pump. For some reason this isn’t always true, I’ve been dialyzing for nearly two years and some people are able to movie their needled arm around, with out selling off the alarm, put there’s always the danger you might dislodge a needle this could be you could bleed to death very quickly, also keep an eye on the machine, I’ve had one leak from a flitting, the machine didn’t shut down, luckily on of the nurses saw what was happening. "Valerie Schwartz" <valerieschwa…@cox.net> wrote in message

news:5JIY9.48797$1b.31002@news1.central.cox.net… – Hide quoted text — Show quoted text -> Well my boyfriend has a graft and is able to move both hands when on the > machine > "Pierre L" <pierro…@hotmail.com> wrote in message > news:WotN9.777$Eh5.223924@news20.bellglobal.com… > > This is highly dependent on where your fistula is. If they have to insert > a > > needle near the elbow, the arm isn’t very mobile. While I’m, on the > machine, > > I can’t do anything that requires two hands. > > Pierre > > "Michelle" <girlie…@aol.comdntudare> wrote in message > > news:20021222193006.23385.00000229@mb-mp.aol.com… > > > Larry said: > > > I am just wondering what I can expect?  Will by fistula arm be totally > > > imobile, or will I be able to work on my laptop? > > > I cross stitch, type on my laptop, write and do school work and whatever > > else I > > > can find to keep me busy while on dialysis.  I’ve never had a problem > with > > > moving my arm during my treatment. > > > ************************

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Also to keep aware of is if your arm starts feeling up with blood. That can be a sign that you are going to have a clout cause my mans did that. I would also keep in mind the hemoglibin because hes if it gets to high clots off the access.. "Blazer Group" <eltecol…@shaw.ca> wrote in message

news:44j%9.177597$sV3.6406152@news3.calgary.shaw.ca… – Hide quoted text — Show quoted text -> You must keep the arm still because moving it will effect the flow pressure, > and shut off the pump. For some reason this isn’t always true, I’ve been > dialyzing for nearly two years and some people are able to movie their > needled arm around, with out selling off the alarm, put there’s always the > danger you might dislodge a needle this could be you could bleed to death > very quickly, also keep an eye on the machine, I’ve had one leak from a > flitting, the machine didn’t shut down, luckily on of the nurses saw what > was happening. > "Valerie Schwartz" <valerieschwa…@cox.net> wrote in message > news:5JIY9.48797$1b.31002@news1.central.cox.net… > > Well my boyfriend has a graft and is able to move both hands when on the > > machine > > "Pierre L" <pierro…@hotmail.com> wrote in message > > news:WotN9.777$Eh5.223924@news20.bellglobal.com… > > > This is highly dependent on where your fistula is. If they have to > insert > > a > > > needle near the elbow, the arm isn’t very mobile. While I’m, on the > > machine, > > > I can’t do anything that requires two hands. > > > Pierre > > > "Michelle" <girlie…@aol.comdntudare> wrote in message > > > news:20021222193006.23385.00000229@mb-mp.aol.com… > > > > Larry said: > > > > I am just wondering what I can expect?  Will by fistula arm be totally > > > > imobile, or will I be able to work on my laptop? > > > > I cross stitch, type on my laptop, write and do school work and > whatever > > > else I > > > > can find to keep me busy while on dialysis.  I’ve never had a problem > > with > > > > moving my arm during my treatment. > > > > ************************

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Hi Larry, I would take a little while to get used to the routine and see how you feel before bringing your laptop.  You will get to know just how much you can and can’t do with your access arm during treatment.  Just always remember those two needles are there and act accordingly.  After that go for it.  Dialysis can be very boring so the more diversions you have while there the better. I bought a laptop specifically for use at dialysis and brought it occassionally.  The only concern you might have is balancing it on your lap or the sides of the chair and making sure staff doesn’t knock it over when they come around.  I got to be pretty good at juggling it and all the other stuff I would bring. Before the needles went in I would plug in the power supply and loop the dc cable up to the chair.  When I wanted the machine I’d pull it out of the bag very gingerly as needles were in and dialysis in progress, bring it up to the chair and start working.  If you have a DVD drive in the machine watching movies can be nice during treatment also.  My biggest gripe about most units is that there is no practical way to get internet access to a laptop on the floor.  If I was starting treatment now I would probably make a cable modem and wireless access happen so the laptop could be used in any part of the unit.  Well that said, I would often stop at the newsstand and pick up a pile of papers and magazines and then stop somewhere else for some dinner to go.  All of that kept me fairly busy for the 4 hours I was on dialysis.  You are doing the right thing getting listed for transplant now.  I moved as fast as possible but I wasn’t listed until about 7 months after dialysis began.  By the way that laptop doesn’t do much anymore!  Transplants work…great! "Larry Davenport" <larryd12…@yahoo.com> wrote in message

news:as0s3a$igs$1@nntp1.u.washington.edu… – Hide quoted text — Show quoted text -> Well, I am finally starting Hemodyalisis and getting on the transplant list > next Monday (Decemebr 2).  It took some doing, but I got an afterwork > appointment for M/W/F, so besides my 40 hour work week I guess I’ll be doing > dialysis 12-15 hours too. > I am just wondering what I can expect?  Will by fistula arm be totally > imobile, or will I be able to work on my laptop?

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Well, I am finally starting Hemodyalisis and getting on the transplant list next Monday (Decemebr 2).  It took some doing, but I got an afterwork appointment for M/W/F, so besides my 40 hour work week I guess I’ll be doing dialysis 12-15 hours too. I am just wondering what I can expect?  Will by fistula arm be totally imobile, or will I be able to work on my laptop?

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Larry, I started hemo almost 2 months ago. I’ve been posting reports about it on the message board of my website: www.igan.ca The message board itself is at http://www.igan.ca/phpBB2/index.php …and the thread is in the "Dialysis & Transplant" forum. I’m sure reading it will answer many of your questions about what to expect. How mobile your fistula arm is will depend on where the fistula is and how close to the elbow either of the two needles need to go. Even if mobile, it doesn’t take much movement to upset the flow through either needle and set off the flow alarm on the dialysis machine. I’ve seen some people use laptops, mostly with one hand though. Most people find that they don’t really want to do much of anything while actually on the machine, except watch TV and try to keep warm under a blanket. It’s a little hard to concentrate on anything, especially at first. It might be a good idea to have someone drive you home the first few times, until you know how you feel after. Anyway, my Pierre’s dialysis updates thread on the message board may be very useful for you. No registration is required. Good luck on Monday. Pierre IgA Nephropathy Support Group www.igan.ca "Larry Davenport" <larryd12…@yahoo.com> wrote in message

news:as0s3a$igs$1@nntp1.u.washington.edu… – Hide quoted text — Show quoted text -> Well, I am finally starting Hemodyalisis and getting on the transplant list > next Monday (Decemebr 2).  It took some doing, but I got an afterwork > appointment for M/W/F, so besides my 40 hour work week I guess I’ll be doing > dialysis 12-15 hours too. > I am just wondering what I can expect?  Will by fistula arm be totally > imobile, or will I be able to work on my laptop?

Response:

Larry- Welcome to the *wonderful* world of ESRD! (please note sarcasm) Just a note about your laptop… mkae sure the battery is charged becasue at my center, the techs didn’t let people plug things in while on he machine…. something about a risk of electric sparks or something. I never used a laptop, but I did have a portablelaptop DVD player I brought with me, and as long as I ran in on battery only, we never had a problem. Good luck with your first visit… don’t be afraid to ask questions! You have a right to know what’s going on! Also, don’t schedule yourself too tightly for during dialysis, some times, you just need to relax for a while…. Lizz Parsons not_too_s…@yahoo.com Diagnosed: Goodpasture’s Syndrome 3/2001 Hemodialysis: 3/2001-3/2002 Peritoneal: 3/2002- ??? Awaiting transplant at UC San Francisco "I know God won’t give me more than I can handle… I just wish He didn’t trust me so much!"

Response:

Good luck Larry. I hope it goes well for you (I mean that relatively). I was on haemo-dialysis for six years before my current transplant. From my experience you can do practically anything whilst on dialysis as long as its done sitting down. It also depends on the sight of the fistula. Mobility will be somewhat restricted, but you will probably be able to use your fistula side hand for typing and writing. I read recently that a man worked on his laptop while it was on his lap and to his dismay found that his genitalia had been seared by the exposure to the hot laptop so make sure there is some decent cover rather than just your pants between laptop and pants. I found dialysis to be particularly useful for sleep as I had a busy university and work time table. I was then able to study/work long hours after a treatment because I felt so much better. A couple of notes worth noting.     You may have the urge to throw up so keep a kidney dish/bowl handy.     You may get (severe) cramps so consider having a moist hot towel ready to wrap around the limb.     You may get bored easily so have a book, magazine, laptop, television or CD player handy at all times. Hope this helped. Regards. — Daniel +——————————————-+ Director – Team GORP Melbourne, Victoria, Australia +——————————————-+ "Larry Davenport" <larryd12…@yahoo.com> wrote in message

news:as0s3a$igs$1@nntp1.u.washington.edu… – Hide quoted text — Show quoted text -> Well, I am finally starting Hemodyalisis and getting on the transplant list > next Monday (Decemebr 2).  It took some doing, but I got an afterwork > appointment for M/W/F, so besides my 40 hour work week I guess I’ll be doing > dialysis 12-15 hours too. > I am just wondering what I can expect?  Will by fistula arm be totally > imobile, or will I be able to work on my laptop?

Response:

Larry, First of all the best of luck to you.  I am a dialysis tech at a facility here in Massachusetts.  Not being a patient myself I can only tell you somethings that I have picked up from my own patients as well as a good friend of mine who has been dialyzing since the age of 13 (she is now 33 and just recently decided that transplant would be an option for her).  The biggest thing I can say is ask as many questions of the staff as you feel you need to…that is what we are there for..if we dont know the answer we will try our best to find out for you.  Your first treatment (at least per protocol at my facility) most likely will be short one….since you have a fistula they will probably start you out with a smaller needle until it matures more.  We offer lidocaine to numb the area however we also discourge the use of it all the time as it can build up scar tissue….I have been told that once the needle is in place its ok…(if you ever were a blood donor in the past the needles are just a hair larger than those….they sting at first but not so bad after)….once the needles are placed they will flush it with heparin as per MD’s order…this is to keep the lines and dialyzer from clotting up during treatment…some patients also recieve heparin during treatment for same reason.  once the blood is run through machine they will connect it to the venous (or return needle) and treatment begins.  Some things that you may experience are if needle is touching the wall on Arterial (pull side) you will feel a wierd buzzy sensation..we refer to this as spasming and can readujust needle or blood flow rate to reduce or eliminate this.   One of the others who posted also mentioned nasuea…..this is quite common…ususally caused by blood pressure dropping due to fluid level decrease….cramping is another  issue that happens when you start to get near "dry"…..until your nephrologist settles on what your dry weight is your "goal " will be calculated based on obvious signs of fluid overload (shorness of breath…puffiness..etc…) and adjusted according to your blood pressure and if connected to a crit monitor by the reading from that. At the end of treatment you will have a choice of using either fistula clamps to apply pressure over needle sites to stop bleeding or holding by hand….holding is recommended as it is better for your access but if for some reason you are unable to hold due to crampy hands or weakness the clamps are an alterntative.  For the first several treatments you probably will feel crappy but over time your body adjusts and you will look back at how you feel now and realize how bad you really feel now. Do your best to be compliant…dont cut treatment times…dont skip…watch your diet/fluid intake….all these will make treatments go a little easier.   Remember not to use your access arm for heavy lifting..no tight or restrictive clothing(including a watch or other simillar jewelry on that arm) do not allow anyone to do a blood pressure or blood work on that arm as well.   If you ever do experience an infiltration (needle has gone clear through) apply ice and follow any further instructions your nurse or tech will give you…..Best of luck and feel free to email me direct if you would like if you have a question i cant answer perhaps one of my two friends who are dialysis patients can (one is always online it seems )…… Deb

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Question:

I see several comments about actos as an alternative to metformin.  My doctor just started me on actos and kept me on metformin.  Is this likely to be a problem? Jonathan

Response:

I see several comments about actos as an alternative to metformin.  My doctor just started me on actos and kept me on metformin.  Is this likely to be a problem? Jonathan

Two different classes of drug. Ratty — All killer no filler ratty at flyingrat.net Site being rebuilt: www.flyingrat.net

Response:

I see several comments about actos as an alternative to metformin.  My doctor just started me on actos and kept me on metformin.  Is this likely to be a problem? Jonathan

 Our local endo uses the sequence:    1.  Try diet and exercise,     2.  then add metformin,     3.  then add Actos or Avandia    4.  then add insulin injections and/or an insulin stimulating med  Actos and Avandia have similar mechanisms, you cannot use the two together.  Metformin works with via different mechanisms than the Actos/Avandia pair; you may "add" either to metformin. Actos works on the PPAR system, it mostly deals with fat and muscles. Metformin has two effects:        a.  It "orders" the liver to stop dumping so much glucose into the blood   (That’s one of the symptoms of T2, a liver which dumps too much, too often)       b.  It reduces Insulin Resistance, perhaps by "convincing" the muscles that they have just exercised. Regards    Old Al

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I see several comments about actos as an alternative to metformin.  My doctor just started me on actos and kept me on metformin.  Is this likely to be a problem? Jonathan

Dear Jonathan, My doctor started me on Actos while still taking the Metformin also, but eventually stopped the Metformin after a couple of weeks.    I am not sure, but it may be because the Actos may not start to work immediately.   Hope someone else explains why. Regards, Evelyn

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Glitazones (Actos and Avandia) ramp up effect over 4 to 8 weeks.  The people I have talked to do not start to notice the effect until after the first month.  But then the beneficial effect becomes very positive and remarkable. One side note:  Weight loss is easier with Metformin (Glucophage). Actos effects the fat cells more than the muscle cells, thus the fat cells lose their insulin resistance (technically, Glitazones mimic reduction in insulin resistance – they do not really change the underlying pathology of Type II diabetes – but the effect on the downstream effects of diabetes is also the same e.g. better BGs, better Hb1Ac, reduced neuropathy, nephropathy, etc.) sooner and to a greater degree than other tissues e.g. liver and muscle – therefore, if your caloric intake exceeds your caloric use you will gain fat easily.  The flip side is that insulin levels are reduced which will increase your Glucagon levels – the "fat burning" hormone – so if your caloric intake is less than your use (diet) you will lose weight as you did pre-diabetes (most Type IIs are weight loss resistant due to high insulin levels). There is a truly golden side to the Glitazones in that they tend to not only lower BG levels, they also lower blood insulin levels.  High blood insulin levels are associated with Heart Disease, Vascular Disease, suppressed thyroid, and Cancer (insulin is a growth stimulant – IGF-1). – Hide quoted text — Show quoted text – I see several comments about actos as an alternative to metformin.  My doctor just started me on actos and kept me on metformin.  Is this likely  to be a problem? Jonathan Dear Jonathan, My doctor started me on Actos while still taking the Metformin also, but eventually stopped the Metformin after a couple of weeks.    I am not sure, but it may be because the Actos may not start to work immediately.   Hope someone else explains why. Regards, Evelyn

Response:

– Hide quoted text — Show quoted text – Glitazones (Actos and Avandia) ramp up effect over 4 to 8 weeks.  The people I have talked to do not start to notice the effect until after the first month.  But then the beneficial effect becomes very positive and remarkable. One side note:  Weight loss is easier with Metformin (Glucophage). Actos effects the fat cells more than the muscle cells, thus the fat cells lose their insulin resistance (technically, Glitazones mimic reduction in insulin resistance – they do not really change the underlying pathology of Type II diabetes – but the effect on the downstream effects of diabetes is also the same e.g. better BGs, better Hb1Ac, reduced neuropathy, nephropathy, etc.) sooner and to a greater degree than other tissues e.g. liver and muscle – therefore, if your caloric intake exceeds your caloric use you will gain fat easily.  The flip side is that insulin levels are reduced which will increase your Glucagon levels – the "fat burning" hormone – so if your caloric intake is less than your use (diet) you will lose weight as you did pre-diabetes (most Type IIs are weight loss resistant due to high insulin levels). There is a truly golden side to the Glitazones in that they tend to not only lower BG levels, they also lower blood insulin levels.  High blood insulin levels are associated with Heart Disease, Vascular Disease, suppressed thyroid, and Cancer (insulin is a growth stimulant – IGF-1).

Dear Dan, Thank you so much for explaining this.   My BG’s are indeed lower since using the Actos, but weight loss has been harder.   So I guess I am an example of what you have mentioned above. Regards, Evelyn

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Question:

Can someone advise me whether IGA nephropathy I a hereditary decease.

Response:

On 9 Sep 2002 02:23:03 -0700, ananth wrote: >Can someone advise me whether IGA nephropathy I a hereditary decease.

Your doctor probably can.   ;-) — Sleepalot aa #1385          For email, cut the string.

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