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In NJ there are these transplant centers– Newark Beth Isreal Medical Center Newark NJ Our Lady of Lourdes Medical Center Camden, NJ St Barnabas Medical Center Livingston, NJ–it’s about 5-10 miles from Newark–that’s where I had mine University Hospital I believe it’s in Newark You can also be listed in some of the hospitals in NYC–St Luke’s, Mt Sanai, there’s a few. Donna If you judge people, you have no time to love them. – Mother Teresa
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CattG50 wrote: > Please tell me where you had your transplant. My son is going to have one very > soon. I live in New Jersey > CattG50
You people on AOL need to quote what you are responding to, otherwise no one knows what the hell you are talking about. — Robert Schuh "There can be only one!" Trane, Jimi, Bird and Jaco were gods!! Donate a kidney, save a life. Ask me about it!
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I received a transplant September 29, 1998 after waiting 3 years on the waiting list.
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I am 24 yrs old and had my 2nd kidney transplant on Dec. 22 1994, I am doing great!
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I did too, in July,’98. It’s going well, other than the weight gain. How are you doing?
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OK, and this means what? LStanley33 wrote: > I had a kidney transplant March of 96 things are great > my blood sugars are a little but thats my fault.
– Robert Schuh "There can be only one!" Trane, Jimi, Bird and Jaco were gods!! Donate a kidney, save a life. Ask me about it!
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Excuse me for asking, but how long did you wait for the first transplant, and how long did the kidney last? My youngest son, Matt, will be needing a transplant. Right now he is on dialysis at home, and actually doing quite well under the circumstances. Jeff – Hide quoted text — Show quoted text -SUN4MOON wrote: > I am 24 yrs old and had my 2nd kidney transplant on Dec. 22 1994, I am doing > great!
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>I had a kidney transplant March of 96 things are great >my blood sugars are a little but thats my fault.
If you’re a diabetic already–the prednisone may make your blood sugars out of whack–that’s why you have to be extra diligant about keeping them under control now–as the diabetes will hurt the new kidney–so I respectfully suggest you try to keep them under control or you’ll damage the kidney–and need another transplant or dialysis .Do you have sweet cravings because of the prednisone? It can make you crave certain things. If you judge people, you have no time to love them. – Mother Teresa
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I recievrd one on Jan 1 1995 After waiting almost two years
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Please tell me where you had your transplant. My son is going to have one very soon. I live in New Jersey CattG50
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I had a kidney transplant March of 96 things are great my blood sugars are a little but thats my fault.
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I received a transplant September 29, 1998 after waiting 3 years.
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Hey all, I’m a new patient and don’t know much about the transplant process. My Doc said we’ll get into it more in a couple of weeks but if anyone has any info,(tests, time down etc.) it will be greatly appreciated. I have two older brothers who have told me I can have one of theirs if it’s a good match, but I’m finding this hard to deal with. I could never forgive myself if because of something unforseen(accident, illness) one of them wound up in the same state of affairs I’m presently in. I figure, My Problem. I’ve got to deal with It. Has anyone dealt with a similair situation? Peace, Bob Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.
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Hi Bob, I am preparing for my 2nd transplant (sept 9) My first was in ‘88 and my sister was the donor. She is doing great and we are getting together next saturday to celebrate 11 years of mostly good health. This time around, by some miracle, My Fiance’ is to be my donor. She started testing in Jan. and got the go ahead a couple of weeks ago. The testing involves mostly blood tests. Towards the end of the testing, there are a couple of tests that are done on the donor to determine how well the donors kidneys work and which one they will use. My Father donated a kidney to my oldest brother in ‘75 and he is now 82 and very healthy, still does gardening, golfing, paints the house, fixes the roof. It is wonderful that you have two brothers that are willing to donate to you. the three of you must be very close. I wish you the best in whatever you decide to do. Fell free to write me at p…@ycrdi.com (work) or ple…@adelphia.net (home) anytime, I would be happy to share my experiences with you. Thank care Pete Leahy – Hide quoted text — Show quoted text -tu…@earthlink.net wrote in message <7lghav$na…@nnrp1.deja.com>… >Hey all, >I’m a new patient and don’t know much about the transplant process. My >Doc said we’ll get into it more in a couple of weeks but if anyone has >any info,(tests, time down etc.) it will be greatly appreciated. I have >two older brothers who have told me I can have one of theirs if it’s a >good match, but I’m finding this hard to deal with. I could never >forgive myself if because of something unforseen(accident, illness) one >of them wound up in the same state of affairs I’m presently in. I >figure, My Problem. I’ve got to deal with It. Has anyone dealt with a >similair situation? Peace, Bob >Sent via Deja.com http://www.deja.com/ >Share what you know. Learn what you don’t.
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Depending upon what all caused your problem in the first place, and if your brothers are prone to the same thing, IE Polycystic Kidney disease is hereditary, and can be passed to multiple children, you may or may not have occasion to get a kidney from your brothers. If they are healthy individuals and have no other history of kidney diseases or problems, you have a great chance of getting a very good match for donation. A living donor transplant seems to last much longer than cadaver style transplants. Must be something to do with the fact that they can move the kidney into the new home much faster than when you have to do all the tests on an unknown donor. Must be lots of reasons for it, but I am not a doctor. Anyway, if your brothers are healthy and able to donate, having just one kidney left behind is not a problem for most folk. You only get one for a transplant, and the closer the match for you, the better off you are. Less rejection probs, drugs are lower dosages, etc. Here’s hoping you have a good match and no problems on your fraternal donor side! It’s a great gift to donate, so definitely think about it if one or both brothers offer to donate! Think long and hard before saying no to a chance like that! Just my two cents worth. It’s your decision. Good luck!
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Hi, will give any info I have. 12 year old daughter had transplant Dec. 98. Concerning testing for transplantation, I have read enough on internet to determine that testing is different in each area of the country. There was a lot of blood work done to determine matching for both the receiver and giver. My husband donated his kidney to our daughter and it required a 3 day stay in hospital for testing, this is not the routine in some areas. They will ask you up until transplant are you sure this is what you want. They will talk to you about your support from families, friends, emotions all of how you are feeling. If family member wants to donate let them, life is now none of us knows what the future holds for any of us. You have to live in the now and they are willing to help you do that because they love you so much. Accept their love. Our daughter was in pain for about 3 days after surgery and recovery timewas about 4 weeks then she was back in school half.day. Within a month she was in school full time. My husband was out of work 2 months and most hospitals have a fund to help families of transplants so they don’t have to worry about finances. Took about 6 months total recovery before he felt he could lift and pull like he use to could. We had and are still having a very positive experience with our transplant. Our daughter is doing GREAT. and you will too. Try not to take all you read on the internet because some people had very bad experiences and that doesn’t mean you will have one like they did. Each person is different and each situation is different. I hope I have helped answer some of your q
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I received a kidney from husband 8 weeks ago and it is working fine. I now have severe pain in my knees since the transplant. MRI, X-Rays, Bone Density test reveal nothing. Could this be the result of the medication. My Doctor has no answer. Has any one else experienced this? My creatnine clearance is 1.3 Patti
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Are you currently having the prednisone dose reduced? Sometimes, if the dose ia reduced too quickly, you can get joint pains, particularly in the knees. If this appears to be what is happening to you, then the solution is to taper the dose at a slower rate. Dave. – Hide quoted text — Show quoted text -Charles Nanco wrote: > I received a kidney from husband 8 weeks ago and it is working fine. I > now have severe pain in my knees since the transplant. MRI, X-Rays, > Bone Density test reveal nothing. Could this be the result of the > medication. My Doctor has no answer. Has any one else experienced > this? My creatnine clearance is 1.3 > Patti
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What is you uric acid numbers?.cyclosporine can increase this immensely and cause gout in the joints..this is no joke..Just a suggestion..ask your coordinator or doctor..I have gout from this and hurts like h*** "Charles Nanco" <na…@erols.com> wrote in message
news:3AD1C2E9.F91B625C@erols.com… – Hide quoted text — Show quoted text -> I received a kidney from husband 8 weeks ago and it is working fine. I > now have severe pain in my knees since the transplant. MRI, X-Rays, > Bone Density test reveal nothing. Could this be the result of the > medication. My Doctor has no answer. Has any one else experienced > this? My creatnine clearance is 1.3 > Patti
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"Alan Davis" <u…@bellatlantic.net> wrote in message
news:3ADC364F.A5DA0778@bellatlantic.net… Alan!! For shame! Mara
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Mara You’re the first message I’ve seen since the 10th, I ust wanted to see if it was still working !!! I didn’t even receive my "test" message Alan – Hide quoted text — Show quoted text -Dominique wrote: > "Alan Davis" <u…@bellatlantic.net> wrote in message > news:3ADC364F.A5DA0778@bellatlantic.net… > Alan!! For shame! > Mara
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Hello, folks – I’ve been lurking for a little while here, and thought I’d be polite & introduce myself! I’m Corinne, and I am trying to arrange to donate a kidney to my brother who is presently on dialysis and needs a transplant. We are blood-type incompatible, and so I’ve contacted Johns Hopkins for information on their Kidney Transplant program, which specializes in helping those who want to donate, but are incompatible with their intended recipient. Anyone here have any experience with JH? The packet of information I got was impressive, and I don’t see any reason we won’t be able to do it; I just wondered if anyone had been through anything similar. Thanks!! Corinne — "Since AP parents are accused of "spoiling" their children with responsiveness, love, understanding, patience, positive interaction, intimacy and closeness, respect, and value – I have decided that spoiling ROCKS! Teaching my child that she ALWAYS deserves all of the above is the right thing to do, and I plan to own my spoiling ways. Baby Spoilers Unite!" –Jessica, iVillage AP board
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brt <yammerNOS…@noneoperamail.atall.com> wrote: >First, having been involved in two or three of their "experiments"; >I can tell you that as long as you are part of something new that >gets names on medical publications, you will be well taken care of and >well treated. This is not a slur, just the way things are as like all >facilities when they have something new and groundbreaking they don’t >like failure.
Balance this with the problems being the first to get a treatment. For my second (unsuccessful) transplant, the docs asked if I wanted to be in a study. I didn’t know to ask, but I was the first to ever be on this particular protocol. Never again. — Sam Saal ss…@sonic.net Delete NOSPAM to reply
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I can’t tell you anything about the program you’re referring to; but received my first transplant at Hopkins and was followed there for the 19 years it lasted. First, having been involved in two or three of their "experiments"; I can tell you that as long as you are part of something new that gets names on medical publications, you will be well taken care of and well treated. This is not a slur, just the way things are as like all facilities when they have something new and groundbreaking they don’t like failure. As for inpatient/outpatient care; the doctors are top notch, but over worked and there is a shortage of floor nurses. But, when the chips are down they will save your life. All in all, for something like you talk about I would look at JHH or University of MD knowing they are excellent teaching and study facilities. But understand that when it comes to day to day non critical care; they are no better than anyone else. I got my second transplant at UMD and know a bit about them as well. brt Kidney Tx 3/79-5/98-JHH 10/99-???-UMD – Hide quoted text — Show quoted text -"Corinne" <N…@Spam.AtAll> wrote in message news:GEfH9.221649$NH2.14991@sccrnsc01… > Hello, folks – I’ve been lurking for a little while here, and thought I’d be > polite & introduce myself! I’m Corinne, and I am trying to arrange to donate > a kidney to my brother who is presently on dialysis and needs a transplant. > We are blood-type incompatible, and so I’ve contacted Johns Hopkins for > information on their Kidney Transplant program, which specializes in helping > those who want to donate, but are incompatible with their intended > recipient. > Anyone here have any experience with JH? The packet of information I got was > impressive, and I don’t see any reason we won’t be able to do it; I just > wondered if anyone had been through anything similar. > Thanks!! > Corinne > — > "Since AP parents are accused of "spoiling" their children with > responsiveness, love, understanding, patience, positive interaction, > intimacy and closeness, respect, and value – I have decided that spoiling > ROCKS! Teaching my child that she ALWAYS deserves all of the above is the > right thing to do, and I plan to own my spoiling ways. Baby Spoilers Unite!" > –Jessica, iVillage AP board
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Corinne <N…@spam.atall> wrote: > Hello, folks – I’ve been lurking for a little while here, and thought I’d be > polite & introduce myself! I’m Corinne, and I am trying to arrange to donate > a kidney to my brother who is presently on dialysis and needs a transplant. > We are blood-type incompatible, and so I’ve contacted Johns Hopkins for > information on their Kidney Transplant program, which specializes in helping > those who want to donate, but are incompatible with their intended > recipient. > Anyone here have any experience with JH? The packet of information I got was > impressive, and I don’t see any reason we won’t be able to do it; I just > wondered if anyone had been through anything similar.
I read two of the papers on this issue. One was from JH, the other from University of Maryland (UMD). Becasue my doctor recommended UMD, I’m working with them instead of JH. It’s still not clear why he prefers UMD over JH, but I’m playing that out for now. I’m also interested in any information anyone has on it. I understanhd the protocol involves plasmapheresis to lower antibody levels. You get a plasmapheresis on non-dialysis days for two weeks then get a living related transplant if they antibody levels drop by enough. — Sam Saal ss…@sonic.net Delete NOSPAM to reply
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I am looking for some information on transplants. A family member has recently been placed on dialysis and will be placed on list for donors. I would like to know what is involved in testing for a match. I would appreiciate any info
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JGmvn wrote: > I am looking for some information on transplants. A family member has > recently > been placed on dialysis and will be placed on list for donors. I > would like to > know what is involved in testing for a match. I would appreiciate any > info
Go to http://www.transweb.org and browse through their various links. Look for references to tissue typing in particular. You first might want to look at general topics such as a)Transplant Patients b)Organ Donation: Issues & Answers c)Transplant Resources. All of these flow from the TRANSWEB homepage. You can also go to the Usenet Newsgroup news://bit.listserv.transplant and look for instructions for their Transplant FAQ’s. Don’t mail direct to them. At the bottom of most messages, you will find: "For instuctions in use of and commands for TRNSPLNT" and a link. Dennis Scott
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Is there anyone out there who has heard the news my Nephrologist told me today. He said that all anti-rejection medications will be paid for by Medicare indefinitely, as opposed to the 1 yr, 2 yr, 3 yr, restrictions in the pastl I only had 3 months to go until Medicare ceased paying for me. I would like this confirmed by someone before I stop pleading with all the sources that be…. to help me. Thank to anyone who knows. Linda Carriere (Ofearth)
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It is true that some of the older drugs had serious side effects, but I had my Tx just over a year ago, take drugs twice a day, have no restrictions of foods or fluids, and have had not had any problems whatsoever. Tx is one of the few areas where you will not get good info by talking to longer term patients, who are still on old drug regimes. The latest drugs have cut rejection rates dramatically, and aside from weight control problems from the Steroids, have very little in the way of side effects. Mike. In article <199801310508.WAA00…@irish-doctors.org>, ?@?.? writes – Hide quoted text — Show quoted text ->Bonnie posted the following article in the Hemodialysis Forum >http://forums.dialysis.net/renal/hemo.htm >Dated : January 30, 1998 at 22:06:42 >Subject: Re: Transplant >http://forums.dialysis.net/renal/messages/hemo/314.html >Thanks for the info Chris. What about the drugs? I have heard so many negative >things about them. I wonder if life expectancy is longer having to take all of >those medications that damage the immune system so drastically. I don’t need >any meds at all, and keep busy and healthy. I am 41 and have felt pretty good, >but I hate the time and the limited fluids. It gets pretty rough…. >Thanks, >Bonnie
– Mike Hoyle
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> What about the drugs? I have heard so many negative >things about them. I wonder if life expectancy is longer having >to take all of those medications that damage the immune system so >drastically. I don’t need any meds at all, and keep busy and healthy.
I can’t let this one go by, even though the person who posted it probably doesn’t read this board. Your life expectancy after transplant is **longer** than your life expectancy under dialysis. Dialysis maintains the body at a level barely above kidney failure. One must deal constantly with the threat of blood clots or periotonitis. Long term consequences include amyloidosis and bone deterioration. Transplant carries with it the risks of all surgeries. The immunosuppression also carries with it some risks, of course, but the immune system is not destroyed. The body can still deal with infections, it just takes a bit longer. If the drugs suppress the immune system too much, they are usually reduced. IMO, transplant is the preferable treatment for ESRD (there still is no cure.) But if one chooses dialysis, he or she should make the decision with accurate information. And if this person is taking no meds under dialysis, she is extremely unusual. No Epogen? No Phoslo? No Rocaltrol? No Nephrovite? Janet Russell (Corofin…@aol.com) ————————————————— * Books are for use * Every person his or her book * * Every book, its reader * Save the time of the reader * — S. R. Ranganathan * In the beginning was the word, and the word was indexed * – Lynn Moncrief
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Dennis Scott posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : February 13, 1998 at 19:09:31 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/335.html I and most tx patients don’t consider the drugs to be so toxic. Current versions seem to be easily tolerated. The new drugs that will be widely available in five years will drastically reduce any risk further. Remember, most people on dialysis die from complications of heart, etc. from dialysis–either from underlying damage by the time they get to ESRD, or by inability to stay at near ideal weights. At my weight, 5 years seemed about it. One of the most respected persons I deal with is a RN who has lived in Japan for twenty some years and dialysed that long before choosing a related donor tx just over a year ago. Keep your options and your mind open. Use the Net to keep informed.
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(bonnie) wrote: >bonnie posted the following article in the Hemodialysis Forum >http://forums.dialysis.net/renal/hemo.htm >Dated : January 18, 1998 at 10:18:40 >Subject: Transplant >http://forums.dialysis.net/renal/messages/hemo/299.html >I have been thinking about transplant, but after studying somewhat, I feel like I’d be trading one nightmare for another. >I’d like to hear from anyone who has had a transplant or is considering one. How do you feel about it? Compared to dialysis, how is it? I do very well on dialysis, but am getting a bit tired of it after over 8 years. I just don’t want to take any risks when I feel so great now. >Thanks is advance……
Check out my homepage at chris_whit…@compuserve.com Chris. ________________________________________________________ http://ourworld.compuserve.com/homepages/chris_whiting http://homepages.enterprise.net/cwhiting "God invented time………..man invented the hurry" "The only things made in a hurry are mistakes" "Oculus habens……….et non vident" "Do not waken sleeping dogs."
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Mary posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : January 24, 1998 at 15:47:11 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/307.html My husband is almost ready for dialysis. I would like to hear from you as to what you find out.
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Dennis Scott posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : January 25, 1998 at 17:57:17 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/311.html I was only on dialysis for 14 months before I got my tx, and I had only done well for the last 5 months, mostly because of unreliability of my AV fistula. If you get a reasonable match, and a healthy kidney, the advantages far outweigh the occasional medical complications. I was 40, and would not have lasted long on dialysis due to weight and fluid problems. Tx’s are only an alternate treatment, not a cure. Most tx’s are happier. Go to www.transweb.org and check links to various sites. Get a lot of information. Read the newsgroups (link from the transweb site) such as "Transplant Newsgroup" (Usenet-"bit.listserv.transplant") Good luck Dennis Scott (Kidney Tx June 06/95)
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Chris Payne posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : January 25, 1998 at 18:54:32 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/312.html I personally can’t imagine any other option. I was recently diagnosed with ESRD, and my doctors did not recommend that I continue on dialysis the rest of my life (I am 32), as it will shorten my life expectancy. In all other aspects I am healthy and can expect a normal life after transplant – other than taking drugs daily. I would trade 30 seconds of drugs for 4 hours of dialysis a day. Plus not being able to drink excessive amounts of fluids is a bummer.
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>Read the newsgroups (link from the transweb site) such >as "Transplant Newsgroup" (Usenet-"bit.listserv.transplant") >Good luck >Dennis Scott (Kidney Tx Jun
I had a similar situation with CAPD and was transplanted on 6/95 at 5:00pm. There are many Transplant sites. Use search engines with Kidney Transplantation as search topic.
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Dear Bonnie, I am a recent transplant pt. I had my transplant 6 weeks ago and am doing better than I have in 15 years. My kidney started working on the operating table. I have normal kidney function for the first time in 15 years. Dialysis was not for me just like transplant may not be for you dialysis was not working for me so I’m taking my chances with the translplant I feel they all have there risks and you should research and weigh the benefits as well as the drawbacks there are both in whatever treatment you decide. As for me I am doing wonderfully so far and I know that this could change at any time but it is worth the risk for me. I hope this helps you somewhat if you want to talk more just let me know. Brenda
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Bonnie posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : January 30, 1998 at 22:06:42 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/314.html Thanks for the info Chris. What about the drugs? I have heard so many negative things about them. I wonder if life expectancy is longer having to take all of those medications that damage the immune system so drastically. I don’t need any meds at all, and keep busy and healthy. I am 41 and have felt pretty good, but I hate the time and the limited fluids. It gets pretty rough…. Thanks, Bonnie
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bonnie wrote: > bonnie posted the following article in the Hemodialysis Forum > http://forums.dialysis.net/renal/hemo.htm > Dated : January 18, 1998 at 10:18:40 > Subject: Transplant > http://forums.dialysis.net/renal/messages/hemo/299.html > I have been thinking about transplant, but after studying somewhat, I feel like I’d be trading one nightmare for another. > I’d like to hear from anyone who has had a transplant or is considering one. How do you feel about it? Compared to dialysis, how is it? I do very well on di > Thanks is advance……
bonnie – It can be a tough decision about a transplant, especially if you are relatively satisfied with dialysis. I’ve had two transplants and am currently on my third course of dialysis (CAPD). I can tell you my first tx was a lifesaver and gave me 14 years of almost normal living. I finished college, worked, travelled and got in a lot of adventure before having to return to dialysis. My second tx lasted 8 years but I struggled with skin problems due to the long years of immunosuppressant therapy. I would much prefer a transplant to dialysis mostly because of the freedom in lifestyle. Right now I am waiting for my skin to get better before trying to get on the list for a third try. I have always been willing to take the risks but you need to examine your inner desire. If you want it, you’ll go for it; if not that’s ok too. As long as you can make each day meaningful, that’s all that really matters. -cindo To reply to e-mail, remove "nospam" from address.
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bonnie posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : January 18, 1998 at 10:18:40 Subject: Transplant http://forums.dialysis.net/renal/messages/hemo/299.html I have been thinking about transplant, but after studying somewhat, I feel like I’d be trading one nightmare for another. I’d like to hear from anyone who has had a transplant or is considering one. How do you feel about it? Compared to dialysis, how is it? I do very well on dialysis, but am getting a bit tired of it after over 8 years. I just don’t want to take any risks when I feel so great now. Thanks is advance……
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Bonnie,, I am so glad that you worte,,, I strongly encourage everybody that needs a transplant and is a good canidate to have the transplant. I realize the decison is a scarey and hard to make but it really changes ones lifestyle. I had a kidney/pancrease transplant in 1995f and am doing wonderfully. There are always risks of a transplant,lower immune system, and soemtimes rejection episodes,but these risks in my opion by far out wiegh dailysis. I am not tied down anymore to treatments, I don’t have the strict diet restrictions that I had on dialysis, my energy as well as self being has improved drasticly. For the first time in my life I was able to go on vacation and not worry about shots. It was wondrful. This is my second transplant and if I were to compare it to dailysis I would do it agian in a heartbeat without even thinking. As far as the risks of rejection episodes, they are always their,,but,,that doesnt mean that you would lose your transplanted kidney the sucsses rates of being able to save the episode are very well. I have had my transplant 2 1/2 years and have had no problems with it. the Doctors have lowed my meds down and am doing good with that. They are improving the medications all the time. I know it is a hard decision to make, trust me I know I have been there twice, but like I said, I would do it agian in a heatbeat. Good luck to you in making your decision, I am sure it will be the right one for you. Feel free to write me with any questions you have
Have a Good Day,,CHERYL
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I am new here. I have been on peritoneal dialysis at home for abut a year and a half. Before that, I was on hemodialysis for abut a year. This morning, the transplant center called and informed me that I have been medically approved for a transplant. While I understand that each transplant center is different, I would like to know what can I expect if and when I am notified that a kidney is ready? If there is anyone out there who has experience in this, I would appreciate a response. thank you, Robert Burgess
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You need to talk to your transplant co-ordinator and they can give you a general idea. My dad was on the Wisconsin transplant list, then was put on hold when he had triple-bypass and unknown infections running through his body. As of today, he back on the transplant list and they are estimating 2 years from now (6 mos. ago it was an 18 mo. wait, so it’s increasing). I wish you the best. Sue — Please visit http://www.somethinspecial.com for great candles & aromatherapy, fast shipping & reliable service! "Mike from Ottawa" <m…@tikacanoe.on.ca> wrote in message news:3gr39s41g3crmqahprg6k4p1el047das9j@4ax.com… – Hide quoted text — Show quoted text -> On Fri, 28 Jan 2000 12:16:15 -0700, "Robert Burgess" > <bobby…@uswest.net> wrote: > >I am new here. I have been on peritoneal dialysis at home for abut a year > >and a half. Before that, I was on hemodialysis for abut a year. > >This morning, the transplant center called and informed me that I have been > >medically approved for a transplant. While I understand that each > >transplant center is different, I would like to know what can I expect if > >and when I am notified that a kidney is ready? > >If there is anyone out there who has experience in this, I would appreciate > >a response. > The waiting time varies, but it’s often between 1 and 3 years. My SO > had a cadaveric transplant on 3 January 2000, here in Ottawa, Ontario, > Canada. We were called at home, and went to the hospital within the > hour. The operation lasted 3 hours, and she went home in only 7 days. > Her new kidney began working immediately, and creatinine dropped from > 900 during CCPD to about 72 (that’s 10.2 and 0.8 in US measurements). > At the hospital, she was kept on a general ward for post-operation > patients. They had her on a morphine pump and a couple of bags of > saline solution. The operation left about a 9" scar, which is below > her navel. > She saw a nutritionist and a pharmacist before leaving hospital. Once > home, it floored her a bit to be left with a bag of drugs after having > it all doled out by hospital staff. We figured it out by just > starting with what she needed for a day. > The donor kidney was CMV+ and she is CMV-, so they’ve put her on > gancyclovir for 3 months. The drug regimen at this hospital is Neoral > (cyclosporine), Cellcept (MMF) and prednisone. They like to keep > their patients on prednisone for life, although eventually it’s taken > every 2nd day. Prednisone can cause a lot of problems when taken > long-term, so it would be interesting to see what your doctors are > prescribing. Many recent studies indicate that it’s best to be > carefully weaned off of prednisone between 6 months and 3 years > post-transplant. Other older studies contradict that. > The first few months are tough, as you get accustomed to high dosages > of immunosuppressants and heal from the surgery. Everyone says it > then gets easier and that they don’t miss dialysis at all, so bear > with it. > If you’re interested, you might also want to join the TRNSPLNT > listserver group. You receive e-mails from the group (about a dozen > per day). Or you can see the mirror on the bit.listserv.transplant > newsgroup. You can get more info on them at > http://www.concentric.net/~Holloway/ > — > To send me an e-mail, first > remove the watercraft from > my address
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bonnie posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : February 18, 1998 at 20:01:56 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/339.html Hi Mary: I hope your husband is doing well. From what others are saying, tranplant is a better way to go. I still feel somewhat tentative, but as I get more information, hopefully I’ll be able to make an informed decision. God bless you and your husband in your decision and your life.
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Michael Lee posted the following article in the Hemodialysis Forum http://forums.dialysis.net/renal/hemo.htm Dated : February 22, 1998 at 22:40:07 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/hemo/355.html There are no other options. I have heard many people attempt to justify staying on dialysis because of frustration and fear. The transplant process is no cake walk. There are times when you will question if it is worth it. After you stabalize and begin a routine with your meds and behavior you wil never look at Dialysis as a positive way of life. After my transplant I went back to school and really began to cherish the things I was unable to do on dialysis. .
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Jean posted the following article in the Patients Forum http://forums.dialysis.net/renal/patient.htm Dated : February 23, 1998 at 09:40:40 Subject: Transplant http://forums.dialysis.net/renal/messages/patient/511.html Does anyone know of a forum for transplant patients? I am most anxious to discuss post-transplant issues with other transplant patients. Thanks for any help.
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Liz posted the following article in the Patients Forum http://forums.dialysis.net/renal/patient.htm Dated : February 24, 1998 at 16:06:58 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/patient/518.html Jean, I don’t know of any transplant forums but my husband has been transplanted for 6 months and we would love to hear from you and discuss post transplant. The e mail is sto…@nbnet.nb.ca
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Jane posted the following article in the Patients Forum http://forums.dialysis.net/renal/patient.htm Dated : February 24, 1998 at 18:39:52 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/patient/524.html TRIO (Transplant Recipients International Organization) has a web-site that you might be interested in checking out: www.primenet.com/~trio/ Depending on where you are located, there may be a chapter in your area. I attend a chapter that meets once a month. While the group is made up of a variety of transplant recipients (including heart, liver, kidney and kidney/pancreas), we have often spent time discussing complications, meds, donor thank-you letters, etc.. I had a kidney/pancreas transplant six months ago. Since then, my experiences of complications include ATN, reaction(development of antibodies) to OKT3 which infiltrated my lungs, severe GI bleed which required cardioversion (along with 6 units of blood), and CMV which perforated my large intestine. But, through it all, my organs survived!! Feel free to email me if you would like (ja…@gene.com). -Jane
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In article <199802250140.SAA19…@irish-doctors.org>, ja…@gene.com (Jane) wrote: > Jane posted the following article in the Patients Forum > http://forums.dialysis.net/renal/patient.htm > Dated : February 24, 1998 at 18:39:52 > Subject: Re: Transplant > http://forums.dialysis.net/renal/messages/patient/524.html > TRIO (Transplant Recipients International Organization) has a web-site
that you might be interested in checking out: www.primenet.com/~trio/ > Depending on where you are located, there may be a chapter in your
area. I attend a chapter that meets once a month. While the group is made up of a variety of transplant recipients (including heart, liver, kidney and kidney/pancreas), we have often spent time discussing complications, meds, donor thank-you letters, etc.. > I had a kidney/pancreas transplant six months ago. Since then, my
experiences of complications include ATN, reaction(development of antibodies) to OKT3 which infiltrated my lungs, severe GI bleed which required cardioversion (along with 6 units of blood), and CMV which perforated my large intestine. But, through it all, my organs survived!! Feel free to email me if you would like (ja…@gene.com). > -Jane
There is a group – bit.listserve.transplant – I used to read it on Newswatcher, but it’s no longer available there. Now I read it either on Dejanews or one Ifound called Freenews, or something like that. I found it on the web just by typing in "transplant" into metasearch. It’s very good. You can also subscribe and receive it all by e-mail. - Pat
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> There is a group – bit.listserve.transplant – I used to read it on > Newswatcher, but it’s no longer available there. Now I read it either on > Dejanews or one Ifound called Freenews, or something like that. I found it > on the web just by typing in "transplant" into metasearch. It’s very good. > You can also subscribe and receive it all by e-mail. - Pat
Here’s the url for the transplant group: http://cgi.feedme.org:8080/cgi-bin/feedme/s?bit.listserv.transplant -Pat
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Dennis Scott posted the following article in the Patients Forum http://forums.dialysis.net/renal/patient.htm Dated : February 27, 1998 at 19:13:22 Subject: Re: Transplant http://forums.dialysis.net/renal/messages/patient/545.html The actual transplant newsgroup is on Usenet. You can access it through several means. An all purpose general posting is thru a link that you can catch via http://www.transweb.org Browse the links there for transplant related sites. Dialysis patients could try their link to RENALNET. If you can access it, try directly news://bit.listserv.transplant Please note that this is moderated newsgroup. You should first submit postings to TRNSP…@wuvmd.wustl.edu Most messages have a link at the end to find directions on how to use the newsgroup. There is also a subscription list for the Australian Dialysis & Transplant Group that is very UNMODERATED that you can access thru the Transweb site.
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hi im mark my dater is 15 and in kidney failure me just got are translife paket we hope that my wife can be a doner my wife is michele my dater is jacquie when we got this paket it sems lick my famly fellapartit hit home this is some wyilled stuff but ithink im O+if i can help you plece E-mail me or if you can just chat whith my wife i whoud be thankfill to you mark E-mail mrathm8434
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Posted in Polycystic Kidney Disease | 
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> Chakolate 
Pierre "Lizz Parsons" <nos…@yahoo.com> wrote in message 
On Tue, 04 Mar 2003 07:06:51 GMT, Larry Krzewinski – Hide quoted text — Show quoted text -<larry.kzREMOVE-T…@gte.net> wrote: >On Tue, 04 Mar 2003 01:50:30 GMT, Lizz Parsons <nos…@yahoo.com> >wrote: >>Pierre- >>I read an interesting article a while back about people advertising >>for their own donors… one man had a single reply to a classified ad >>he placed, and that stranger was a PERFECT match. >>Anyway, that article also commented that it could become a marketing >>campagin, and that young, attractive patients might do well to try >>this method to garner some attention. I’ve certainly considered it >>myself! >JPG! <grin> 