Question:
Usually, yes. I’m very lucky – I’ve had a tx, but my antibody level is 0. Go figure. "DEB320" <deb…@aol.com> wrote in message
news:20001012185924.09560.00000300@ng-mc1.aol.com… – Hide quoted text — Show quoted text -> Dachsieg…@fuse.net wrote: > >What happened in those 10 years?? I’ve been waiting 19 months, and I’m > >already questioning whether something fishy is going on. What did they tell > >you when you inquired? > Lots of different things – the list got longer, my antibodies were too high, > etc etc. > You have to understand when one already has had a transplant it is more > difficult to get another one. It’s just the way it is.
Response:
Kidney transplants can be a life or death situation when a person has absolutely no access sites left to do any type of dialysis and in cases where catheters are just not doing an adequate job. This is a rare occurrence but it does happen to some people. That is what I meant when I said earlier that someone in a more critical state of health could have been bumped ahead of you. You’re right it goes to the best possible matches but due to medical circumstances that best possible match may not be suitable. Infections, colds, antibodies, a whole host of things can be going on to cause that best possible match not to be suitable. I waited 2 1/2 years on one list and never got one call. I listed at a 2nd center and got a call within 4 weeks but a big part of me getting that kidney came down to "the best possible match not being healthy enough to take the kidney" There were 4 other people ahead of me for the kidney that I now have. One of those people were sick, one had problems with antibodies, and 2 refused the transplant even though they either of them was a match. It was just a stroke of luck that I ended up with my kidney transplant. To be honest with you my surgeon even gave me the choice of taking this kidney or passing it on to next in line for it. My sister is a perfect match and could have easily donated to me but since they aren’t sure what even caused my disease and aren’t sure if it’s hereditary I chose to go with the cadaver kidney. There are a lot of things that go on behind the scenes that we never see that doesn’t necessarily mean that anything fishy is going on. Celeste — =========================================================================== = ========== Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! Get Your Organ Donor Card Here ~~~~~~~~~ http://www.TransplantResourcePage.com In the time it takes an average American to commute to and from work — 90 minutes — someone dies waiting for an organ transplant =========================================================================== = ========== "Dachsie girl" <dachsieg…@fuse.net> wrote in message
news:suc1b4ilecaoc4@corp.supernews.com… | I’ve been told by all I’ve asked that it first considers the best match, and | of those it matches the best, it goes to the one who’s been waiting the | longest. | | Kidneys aren’t a "life or death" transplant, they’re quality of life | transplants. It’s different than a liver or heart, where there are people | who are going to die if they don’t get a transplant. | | Yes, people deteriorate on dialysis, but by that time they usually aren’t | candidates for transplantation anyway, ’cause they’re too sick to receive | them. | | "J Simpson" <ju…@hotkey.net.au> wrote in message | news:dp6F5.33$xo.1513@nsw.nnrp.telstra.net… | > What we’ve been told here is that every year there are more people | diagnosed | > with renal failure and each year the number of potential donors is | > decreasing because of the effectiveness of the "safety on the roads" | > government campaigns. | > | > Also, here, there is no such thing as "people ahead of me". You don’t get | a | > transplant based on what number in the queue you are, but whether its the | > best possible match. If there is a match with more than one, then the | > person who is in greatest need is the one to receive it. | > | > 20 years ago I was transplanted after 10 months. I’ve been told to expect | > at least a 5 year wait this time around. | > | > Judanne | > | > — | > Improve your Health and Financial Prospects | > Receive a valuable FREE service, just for looking | > www.wellthmaker.com/O2Bfree | > Then Build Up Your Business with: | > www.theduplicator.com/vip.cgi/02Bfree | > | > "David McLees" <da…@donet.com> wrote in message | > news:QVHE5.59416$Sr.58528@newsfeed.slurp.net… | > > I know what you mean I’ve been waitng 3 1/2 years now for my second | > > transplant. My first transplant that I had about 10 years ago I only had | > to | > > wait about 7 months. | > > Dachsie girl <dachsieg…@fuse.net> wrote in message | > > news:su68jmmb9cn64e@corp.supernews.com… | > > > When I was listed, I was told that an average wait time was about 2 | > years. | > > > OK, fine, I’m waiting. | > > > | > > > Yesterday, someone told me that they are now telling people that the | > wait | > > > time is more like 3 years, and that I should prepare to wait that | long. | > > That | > > > seems crazy – unless there are NO donors, and unless they’re putting | > > people | > > > on the list ahead of me, my wait time should be about what they told | me | > > when | > > > I was listed, right? | > > > | > > > If this was correct, my time would just keep getting longer and | longer, | > > > ’cause that’s what is happening. Help – I’m a little freaked out! | > > > | > > > | > > | > > | > | > | |
Response:
Dachsieg…@fuse.net wrote: >What happened in those 10 years?? I’ve been waiting 19 months, and I’m >already questioning whether something fishy is going on. What did they tell >you when you inquired?
Lots of different things – the list got longer, my antibodies were too high, etc etc. You have to understand when one already has had a transplant it is more difficult to get another one. It’s just the way it is.
Response:
You’re right – I wrote back too quickly. I knew all this info, but wasn’t thinking when I wrote. "Celeste" <Cele…@boonies.com> wrote in message
news:D6wF5.35009$F65.2073954@nntp2.onemain.com… – Hide quoted text — Show quoted text -> Kidney transplants can be a life or death situation when a person has > absolutely no access sites left to do any type of dialysis and in cases > where catheters are just not doing an adequate job. This is a rare > occurrence but it does happen to some people. That is what I meant when I > said earlier that someone in a more critical state of health could have been > bumped ahead of you. > You’re right it goes to the best possible matches but due to medical > circumstances that best possible match may not be suitable. Infections, > colds, antibodies, a whole host of things can be going on to cause that best > possible match not to be suitable. > I waited 2 1/2 years on one list and never got one call. I listed at a > 2nd center and got a call within 4 weeks but a big part of me getting that > kidney came down to "the best possible match not being healthy enough to > take the kidney" There were 4 other people ahead of me for the kidney that > I now have. One of those people were sick, one had problems with > antibodies, and 2 refused the transplant even though they either of them was > a match. It was just a stroke of luck that I ended up with my kidney > transplant. To be honest with you my surgeon even gave me the choice of > taking this kidney or passing it on to next in line for it. My sister is a > perfect match and could have easily donated to me but since they aren’t sure > what even caused my disease and aren’t sure if it’s hereditary I chose to go > with the cadaver kidney. > There are a lot of things that go on behind the scenes that we never see > that doesn’t necessarily mean that anything fishy is going on. > Celeste > —
=========================================================================== = > ========== > Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! > Get Your Organ Donor Card Here ~~~~~~~~~ > http://www.TransplantResourcePage.com > In the time it takes an average American to commute to and from work — 90 > minutes — someone dies waiting for an organ transplant
=========================================================================== = – Hide quoted text — Show quoted text -> ========== > "Dachsie girl" <dachsieg…@fuse.net> wrote in message > news:suc1b4ilecaoc4@corp.supernews.com… > | I’ve been told by all I’ve asked that it first considers the best match, > and > | of those it matches the best, it goes to the one who’s been waiting the > | longest. > | > | Kidneys aren’t a "life or death" transplant, they’re quality of life > | transplants. It’s different than a liver or heart, where there are people > | who are going to die if they don’t get a transplant. > | > | Yes, people deteriorate on dialysis, but by that time they usually aren’t > | candidates for transplantation anyway, ’cause they’re too sick to receive > | them. > | > | "J Simpson" <ju…@hotkey.net.au> wrote in message > | news:dp6F5.33$xo.1513@nsw.nnrp.telstra.net… > | > What we’ve been told here is that every year there are more people > | diagnosed > | > with renal failure and each year the number of potential donors is > | > decreasing because of the effectiveness of the "safety on the roads" > | > government campaigns. > | > > | > Also, here, there is no such thing as "people ahead of me". You don’t > get > | a > | > transplant based on what number in the queue you are, but whether its > the > | > best possible match. If there is a match with more than one, then the > | > person who is in greatest need is the one to receive it. > | > > | > 20 years ago I was transplanted after 10 months. I’ve been told to > expect > | > at least a 5 year wait this time around. > | > > | > Judanne > | > > | > — > | > Improve your Health and Financial Prospects > | > Receive a valuable FREE service, just for looking > | > www.wellthmaker.com/O2Bfree > | > Then Build Up Your Business with: > | > www.theduplicator.com/vip.cgi/02Bfree > | > > | > "David McLees" <da…@donet.com> wrote in message > | > news:QVHE5.59416$Sr.58528@newsfeed.slurp.net… > | > > I know what you mean I’ve been waitng 3 1/2 years now for my second > | > > transplant. My first transplant that I had about 10 years ago I only > had > | > to > | > > wait about 7 months. > | > > Dachsie girl <dachsieg…@fuse.net> wrote in message > | > > news:su68jmmb9cn64e@corp.supernews.com… > | > > > When I was listed, I was told that an average wait time was about 2 > | > years. > | > > > OK, fine, I’m waiting. > | > > > > | > > > Yesterday, someone told me that they are now telling people that the > | > wait > | > > > time is more like 3 years, and that I should prepare to wait that > | long. > | > > That > | > > > seems crazy – unless there are NO donors, and unless they’re putting > | > > people > | > > > on the list ahead of me, my wait time should be about what they told > | me > | > > when > | > > > I was listed, right? > | > > > > | > > > If this was correct, my time would just keep getting longer and > | longer, > | > > > ’cause that’s what is happening. Help – I’m a little freaked out! > | > > > > | > > > > | > > > | > > > | > > | > > | > |
Response:
When i was first listed for my 2nd transplant I was told, no problem we can get you one in a year. That was in 1988. Then I was told the same thing by the same hospital in 1998 when I had been on their list 10 years! Well, now it’s 2000, I have a kidney, but not from that original center. If I had only listed myself at that one center I would still be waiting, and waiting and…….
Response:
What happened in those 10 years?? I’ve been waiting 19 months, and I’m already questioning whether something fishy is going on. What did they tell you when you inquired? "DEB320" <deb…@aol.com> wrote in message
news:20001012053811.24229.00000569@ng-me1.aol.com… – Hide quoted text — Show quoted text -> When i was first listed for my 2nd transplant I was told, no problem we can get > you one in a year. That was in 1988. Then I was told the same thing by the > same hospital in 1998 when I had been on their list 10 years! Well, now it’s > 2000, I have a kidney, but not from that original center. If I had only listed > myself at that one center I would still be waiting, and waiting and…….
Response:
I’ve been told by all I’ve asked that it first considers the best match, and of those it matches the best, it goes to the one who’s been waiting the longest. Kidneys aren’t a "life or death" transplant, they’re quality of life transplants. It’s different than a liver or heart, where there are people who are going to die if they don’t get a transplant. Yes, people deteriorate on dialysis, but by that time they usually aren’t candidates for transplantation anyway, ’cause they’re too sick to receive them. "J Simpson" <ju…@hotkey.net.au> wrote in message
news:dp6F5.33$xo.1513@nsw.nnrp.telstra.net… – Hide quoted text — Show quoted text -> What we’ve been told here is that every year there are more people diagnosed > with renal failure and each year the number of potential donors is > decreasing because of the effectiveness of the "safety on the roads" > government campaigns. > Also, here, there is no such thing as "people ahead of me". You don’t get a > transplant based on what number in the queue you are, but whether its the > best possible match. If there is a match with more than one, then the > person who is in greatest need is the one to receive it. > 20 years ago I was transplanted after 10 months. I’ve been told to expect > at least a 5 year wait this time around. > Judanne > — > Improve your Health and Financial Prospects > Receive a valuable FREE service, just for looking > www.wellthmaker.com/O2Bfree > Then Build Up Your Business with: > www.theduplicator.com/vip.cgi/02Bfree > "David McLees" <da…@donet.com> wrote in message > news:QVHE5.59416$Sr.58528@newsfeed.slurp.net… > > I know what you mean I’ve been waitng 3 1/2 years now for my second > > transplant. My first transplant that I had about 10 years ago I only had > to > > wait about 7 months. > > Dachsie girl <dachsieg…@fuse.net> wrote in message > > news:su68jmmb9cn64e@corp.supernews.com… > > > When I was listed, I was told that an average wait time was about 2 > years. > > > OK, fine, I’m waiting. > > > Yesterday, someone told me that they are now telling people that the > wait > > > time is more like 3 years, and that I should prepare to wait that long. > > That > > > seems crazy – unless there are NO donors, and unless they’re putting > > people > > > on the list ahead of me, my wait time should be about what they told me > > when > > > I was listed, right? > > > If this was correct, my time would just keep getting longer and longer, > > > ’cause that’s what is happening. Help – I’m a little freaked out!
Response:
What we’ve been told here is that every year there are more people diagnosed with renal failure and each year the number of potential donors is decreasing because of the effectiveness of the "safety on the roads" government campaigns. Also, here, there is no such thing as "people ahead of me". You don’t get a transplant based on what number in the queue you are, but whether its the best possible match. If there is a match with more than one, then the person who is in greatest need is the one to receive it. 20 years ago I was transplanted after 10 months. I’ve been told to expect at least a 5 year wait this time around. Judanne — Improve your Health and Financial Prospects Receive a valuable FREE service, just for looking www.wellthmaker.com/O2Bfree Then Build Up Your Business with: www.theduplicator.com/vip.cgi/02Bfree "David McLees" <da…@donet.com> wrote in message
news:QVHE5.59416$Sr.58528@newsfeed.slurp.net… – Hide quoted text — Show quoted text -> I know what you mean I’ve been waitng 3 1/2 years now for my second > transplant. My first transplant that I had about 10 years ago I only had to > wait about 7 months. > Dachsie girl <dachsieg…@fuse.net> wrote in message > news:su68jmmb9cn64e@corp.supernews.com… > > When I was listed, I was told that an average wait time was about 2 years. > > OK, fine, I’m waiting. > > Yesterday, someone told me that they are now telling people that the wait > > time is more like 3 years, and that I should prepare to wait that long. > That > > seems crazy – unless there are NO donors, and unless they’re putting > people > > on the list ahead of me, my wait time should be about what they told me > when > > I was listed, right? > > If this was correct, my time would just keep getting longer and longer, > > ’cause that’s what is happening. Help – I’m a little freaked out!
Response:
I am sorry, I am confusing you with someone else on here going to HUP, forgive me! I am still forgetful after all that dialysis! Cheryl — TC3 "TC3" <t…@erols.com> wrote in message
news:8s0jqh$js1$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> I think what is so hard to remember too is that the donor > must have suffered an illness/accident that renders them brain > dead which is like the lowest odds of happening "like finding a needle > in a haystack" as I have been told. I know you are at the place I go > to and got my tx …hang in, they are moving people through as it > is a big hospital known all over. I was called last May(two years into > dialysis) and then this Feb(one other time my doc mumbled about as > I was very anemic and she "slipped" that they had called) and then > April. You are in my prayers. Love Cheryl > — > TC3 > "Celeste" <Cele…@boonies.com> wrote in message > news:Z3HE5.32162$XV.1691504@nntp3.onemain.com… > > You can’t hold a transplant center to any specific time period as to > when > > you should have your transplant they really have no control all they can > do > > is make an educated guess. > > There are many things that can affect the wait time on a list. The > > biggest being the fact that the number of donors were not what they > expected > > in that time frame, that the donated organs were not suitable for some > > medical reason, it could be that you just didn’t have a suitable match > yet, > > or that someone in a more critical state than your health condition was > > moved ahead. > > I know it’s hard waiting and you sometimes feel like it will never > > happen we all go through that. The best we can do it just sit back and > wait > > it out or try and find a suitable living donor. > > Celeste > > —
=========================================================================== = > > ========== > > Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! > > Get Your Organ Donor Card Here ~~~~~~~~~ > > http://www.TransplantResourcePage.com > > In the time it takes an average American to commute to and from work — 90 > > minutes — someone dies waiting for an organ transplant
=========================================================================== = – Hide quoted text — Show quoted text -> > ========== > > "Dachsie girl" <dachsieg…@fuse.net> wrote in message > > news:su68jmmb9cn64e@corp.supernews.com… > > | When I was listed, I was told that an average wait time was about 2 > years. > > | OK, fine, I’m waiting. > > | > > | Yesterday, someone told me that they are now telling people that the > wait > > | time is more like 3 years, and that I should prepare to wait that long. > > That > > | seems crazy – unless there are NO donors, and unless they’re putting > > people > > | on the list ahead of me, my wait time should be about what they told me > > when > > | I was listed, right? > > | > > | If this was correct, my time would just keep getting longer and longer, > > | ’cause that’s what is happening. Help – I’m a little freaked out! > > | > > |
Response:
I think what is so hard to remember too is that the donor must have suffered an illness/accident that renders them brain dead which is like the lowest odds of happening "like finding a needle in a haystack" as I have been told. I know you are at the place I go to and got my tx …hang in, they are moving people through as it is a big hospital known all over. I was called last May(two years into dialysis) and then this Feb(one other time my doc mumbled about as I was very anemic and she "slipped" that they had called) and then April. You are in my prayers. Love Cheryl — TC3 "Celeste" <Cele…@boonies.com> wrote in message
news:Z3HE5.32162$XV.1691504@nntp3.onemain.com… – Hide quoted text — Show quoted text -> You can’t hold a transplant center to any specific time period as to when > you should have your transplant they really have no control all they can do > is make an educated guess. > There are many things that can affect the wait time on a list. The > biggest being the fact that the number of donors were not what they expected > in that time frame, that the donated organs were not suitable for some > medical reason, it could be that you just didn’t have a suitable match yet, > or that someone in a more critical state than your health condition was > moved ahead. > I know it’s hard waiting and you sometimes feel like it will never > happen we all go through that. The best we can do it just sit back and wait > it out or try and find a suitable living donor. > Celeste > —
=========================================================================== = > ========== > Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! > Get Your Organ Donor Card Here ~~~~~~~~~ > http://www.TransplantResourcePage.com > In the time it takes an average American to commute to and from work — 90 > minutes — someone dies waiting for an organ transplant
=========================================================================== = – Hide quoted text — Show quoted text -> ========== > "Dachsie girl" <dachsieg…@fuse.net> wrote in message > news:su68jmmb9cn64e@corp.supernews.com… > | When I was listed, I was told that an average wait time was about 2 years. > | OK, fine, I’m waiting. > | > | Yesterday, someone told me that they are now telling people that the wait > | time is more like 3 years, and that I should prepare to wait that long. > That > | seems crazy – unless there are NO donors, and unless they’re putting > people > | on the list ahead of me, my wait time should be about what they told me > when > | I was listed, right? > | > | If this was correct, my time would just keep getting longer and longer, > | ’cause that’s what is happening. Help – I’m a little freaked out! > | > |
Response:
I know that nobody can predict – but they do give an estimate based on the average of what’s going on. That’s all I was looking for. The person I talked to didn’t say anything about a smaller donor pool – she just said that they have so many new people needing tx’s that they’re telling people that it will be about 3 yrs now. My question is, because I was told 2 yrs and there couldn’t be more people ahead of me now than there was then, shouldn’t I expect to wait approx. 2 yrs, not 3? "Celeste" <Cele…@boonies.com> wrote in message
news:Z3HE5.32162$XV.1691504@nntp3.onemain.com… – Hide quoted text — Show quoted text -> You can’t hold a transplant center to any specific time period as to when > you should have your transplant they really have no control all they can do > is make an educated guess. > There are many things that can affect the wait time on a list. The > biggest being the fact that the number of donors were not what they expected > in that time frame, that the donated organs were not suitable for some > medical reason, it could be that you just didn’t have a suitable match yet, > or that someone in a more critical state than your health condition was > moved ahead. > I know it’s hard waiting and you sometimes feel like it will never > happen we all go through that. The best we can do it just sit back and wait > it out or try and find a suitable living donor. > Celeste > —
=========================================================================== = > ========== > Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! > Get Your Organ Donor Card Here ~~~~~~~~~ > http://www.TransplantResourcePage.com > In the time it takes an average American to commute to and from work — 90 > minutes — someone dies waiting for an organ transplant
=========================================================================== = – Hide quoted text — Show quoted text -> ========== > "Dachsie girl" <dachsieg…@fuse.net> wrote in message > news:su68jmmb9cn64e@corp.supernews.com… > | When I was listed, I was told that an average wait time was about 2 years. > | OK, fine, I’m waiting. > | > | Yesterday, someone told me that they are now telling people that the wait > | time is more like 3 years, and that I should prepare to wait that long. > That > | seems crazy – unless there are NO donors, and unless they’re putting > people > | on the list ahead of me, my wait time should be about what they told me > when > | I was listed, right? > | > | If this was correct, my time would just keep getting longer and longer, > | ’cause that’s what is happening. Help – I’m a little freaked out! > | > |
Response:
I know what you mean I’ve been waitng 3 1/2 years now for my second transplant. My first transplant that I had about 10 years ago I only had to wait about 7 months. Dachsie girl <dachsieg…@fuse.net> wrote in message
news:su68jmmb9cn64e@corp.supernews.com… – Hide quoted text — Show quoted text -> When I was listed, I was told that an average wait time was about 2 years. > OK, fine, I’m waiting. > Yesterday, someone told me that they are now telling people that the wait > time is more like 3 years, and that I should prepare to wait that long. That > seems crazy – unless there are NO donors, and unless they’re putting people > on the list ahead of me, my wait time should be about what they told me when > I was listed, right? > If this was correct, my time would just keep getting longer and longer, > ’cause that’s what is happening. Help – I’m a little freaked out!
Response:
You can’t hold a transplant center to any specific time period as to when you should have your transplant they really have no control all they can do is make an educated guess. There are many things that can affect the wait time on a list. The biggest being the fact that the number of donors were not what they expected in that time frame, that the donated organs were not suitable for some medical reason, it could be that you just didn’t have a suitable match yet, or that someone in a more critical state than your health condition was moved ahead. I know it’s hard waiting and you sometimes feel like it will never happen we all go through that. The best we can do it just sit back and wait it out or try and find a suitable living donor. Celeste — =========================================================================== = ========== Carry A Life In Your Pocket, Become An Organ Donor Today!!!!!!! Get Your Organ Donor Card Here ~~~~~~~~~ http://www.TransplantResourcePage.com In the time it takes an average American to commute to and from work — 90 minutes — someone dies waiting for an organ transplant =========================================================================== = ========== "Dachsie girl" <dachsieg…@fuse.net> wrote in message
news:su68jmmb9cn64e@corp.supernews.com… | When I was listed, I was told that an average wait time was about 2 years. | OK, fine, I’m waiting. | | Yesterday, someone told me that they are now telling people that the wait | time is more like 3 years, and that I should prepare to wait that long. That | seems crazy – unless there are NO donors, and unless they’re putting people | on the list ahead of me, my wait time should be about what they told me when | I was listed, right? | | If this was correct, my time would just keep getting longer and longer, | ’cause that’s what is happening. Help – I’m a little freaked out! | |
Response:
When I was listed, I was told that an average wait time was about 2 years. OK, fine, I’m waiting. Yesterday, someone told me that they are now telling people that the wait time is more like 3 years, and that I should prepare to wait that long. That seems crazy – unless there are NO donors, and unless they’re putting people on the list ahead of me, my wait time should be about what they told me when I was listed, right? If this was correct, my time would just keep getting longer and longer, ’cause that’s what is happening. Help – I’m a little freaked out!
If you like this post and would like to receive updates from this blog, please subscribe our feed.